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CANCER & TREATMENTS SUPPORT & SURVIVORSHIP PREVENTION & RISK ASSESSMENT CLINICAL TRIALS & RESEARCH | |
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Home > Support & Survivorship > Survivorship > Cancer and the Family > Resources Child Cancer Survivors
Updated 07/07 Print-friendly version of this guide! BrochuresLeukemia and Lymphoma Society. "Learning & Living With Cancer" - note: link opens as a .pdf document.National Children's Cancer Society. "The Mountain You've Climbed: A Young Adult's Guide to Childhood Cancer Survivorship". A printable version is available at: http://nationalchildrenscancersociety.com National Cancer Institute. "Facing Forward Series: Life After Cancer Treatment". ArticlesKazak, Anne E. "Childhood Cancer Survivorship: Post-Traumatic Stress Can Affect Both Children and Their Parents". (Coping; Vol. 16, no. 1 January/February 2002).Keene, Nancy. "Comprehensive Follow-Up Programs: A Necessity Not luxury". (Candlelighters; Spring 2002). BooksKeene, Nancy, Hobbie Wendy & Ruccione, Kathy. Childhood Cancer Survivors: a Practical Guide to Your Future. Sebastopol: O'Reilly, 2000.Web ResourcesBeyond the Cure
Provided by the National Children's Cancer Society this site offers extensive information pertaining to all areas of a
survivor's life. Detailed articles offer practical information on medical, educational and financial long-term
effects.
Lance Armstrong Foundation. LiveStrong.
The Help & Support section of this site contains information on many topics of interest to cancer survivors including
physical, emotional and practical issues. Each topic has detailed information, suggestions of what to do and a list
of resources.
The site of the Long-Term Follow-Up Study, a collaborative, multi-institutional study, funded by the National
Cancer Institute, of individuals who survived five or more years after treatment for childhood cancer.
Long-Term Follow-Up Guidelines for Survivors of Childhood,
Adolescent, and Young Adult Cancer
Developed by the Children's Oncology Group, these guidelines provide recommendations for screening and management of
late effects that may potentially arise as a result of therapeutic exposures used during treatment for pediatric
malignancies.
Outlook - Life Beyond Childhood Cancer
Supported by the University of Wisconsin Comprehensive Cancer Center, this is a comprehensive source of information
on practical, medical and emotional issues affecting childhood cancer survivors.
Email Groups (Listservs)PED-ONC SURVIVORS is an online discussion group for survivors of childhood cancer, hosted by the Association for Cancer Online Resources ACOR. You may subscribe to these email groups from OncoLink's automated listserv subscriber.This list does not constitute an endorsement of the information contained in the resources. It is provided for educational purposes only and are not intended for nor engaged in rendering medical advice or professional services. The information provided through this list and its links should not be used for diagnosing or treating a health problem or a disease. It is not a substitute for professional care. |
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University of Michigan Comprehensive Cancer Center This site is part of the U-M Health System. The information presented is not a tool for self diagnosis or a substitute for professional care. © 2008 U-M Comprehensive Cancer Center |
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The purpose of this information guide is to help provide information and resources for adults on child cancer survivorship.
This list is not meant to be comprehensive, but rather to provide starting points for information seeking. The
materials are available at the Patient Education Resource Center of the University of Michigan Comprehensive
Cancer Center in room B1-361 
