| By
Suzanne S. Mahler
was diagnosed with ovarian
cancer. It was inevitable that I, too, would be bald when
after surgery my doctor ordered six chemotherapy treatments
as an insurance policy. The loss of my hair just seemed like
a minor inconvenience, so I asked my husband, Jay, to shave
my head. During the course of Taxol and cisplatin I lost all
body hair, and the two of us were one very shiny-headed couple.
Jay has alopoecia areata, an immune system disfunction that
prevents hair follicle growth. Since age 15, he has had almost
no body hair, although he has experienced the coming and going
of eyebrows and eyelashes. Jay wore a hairpiece for almost
30 years before he felt self-confident and secure enough to
discard his hairpiece and declare himself to our community.
Although not life-threatening, Jay's disease deeply affected
his psyche. As a young swimmer, people taunted him with "Mr.
Clean!" As an adult he would not participate in activities
like jumping into a pool with his son or playing volleyball
because his wig might blow off. Having shared those worries
and worked through many of his feelings with him, I have a
different perspective on hair. For this reason, losing my
hair was not the big deal for me that it often is for many
other cancer patients.
In fact, we even had fun with our double-whammy baldness.
When I returned to full-time work, Jay and I sent out a card
with the photo shown of the two of us, to thank all of our
friends and acquaintances for their support during my illness.
Jay runs a support group for adults and youngsters who have
alopoecia areata, and we attend all the national meetings.
These experiences provided coping mechanisms and gave me strength
to endure and pull together a vision of who I am. I never
felt ugly, alien or separate from others.
I have since left my stressful, big-league job and am now
working part-time in the patient resource center of a local
cancer center helping to empower other cancer patients with
knowledge of their illness. I am nourished by this job, but
now I also take time for meditation, journal writing, exercise
and yoga. Now, my philosophy is not to sweat the small things.
It's all about being truly alive. L'chaim -- to life!
Reprinted by permission of COPING magazine
Editor's Note: Suzanne is now back in the big-leagues as the
Executive Director of the Association of American Cancer Institutes.
She is using her experience as a cancer survivor to initiate
new survivorship programs within the member Cancer Centers.
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