Profile
in Survival: Azailean Barnes, Saginaw, Michigan
Diagnosed with pancreatic cancer, 2004
Like many forms of cancer, pancreatic cancer rarely announces
its arrival loudly. It’s far more likely to send a series
of signals, some easy to ignore, to make it’s presence
known. That was the case for Azailean Barnes, who, late in
2003, began experiencing back pain at night. Lying in bed,
it was easy to blame the pain on doing too much holiday preparation.
But soon after, a second sign appeared: she noticed a yellow
tinge to her eyes. An indicator of jaundice, it alarmed Barnes
and her family. By early January, 2004, after growing ever
weaker and more ill, she was brought to an emergency room
near her home in Saginaw, Michigan.
“At first, the early tests seemed to indicate a problem
with my gall bladder,” Barnes recalls. But further tests
confirmed a mass in the bile duct, causing blockage between
the duct and the liver. A PCT tube was inserted to drain the
fluid buildup. “That was a very uncomfortable time,”
she recalls. “I was in a great deal of pain from the
tube, and was quite fearful too.” After a lengthy hospital
stay, she returned home, only to return a few days later,
dehydrated and completely without appetite. They diagnosed
pancreatic cancer. “That’s when the hospital recommended
I go to U-M for surgery. I remember one nurse saying to me,
‘you need to go straight to Ann Arbor.”
During her first visit to the U-M Comprehensive Cancer Center’s
Multidisciplinary Pancreatic Clinic, Barnes’ more tests
were performed, and a biopsy confirmed the presence of a tumor.
“I was so afraid. I thought I was going to die, and
very soon. You hear about cancer and you think it takes you
on out – I thought that would be the case for me. But
after meeting with my doctor, I grew to have so much faith
in him, and soon, I began to feel more positive about my disease.”
Barnes’ tumor was inoperable, so the U-M team advocated
a combination of radiation therapy and chemotherapy. Her regimen
consisted of 15 consecutive days of radiation, followed by
about a half-dozen chemotherapy treatments, all of which was
completed by September.
During a follow-up visit in December, 2004, Barnes reflected
on the experience: “I’ve gone from being full
of fear to finding peace with my cancer. When I was first
hospitalized, I needed my sister to stay with me nearly around-the-clock.
But now, I’m not afraid to be alone – I can do
things for myself again. I’m pain free, and getting
back to my regular routine.” The ordeal resulted in
a weight loss of more than 100 pounds for Barnes, but she
considers that “one of the blessings,” feeling
that she’s much better off at her current weight.
“I’m back to my normal activities – going
to church, shopping, cooking (and eating!), and doing light
housework. Everyone told me I’d bounce back, but it
was hard to believe after feeling so tired and drained, and
having no appetite. During treatment, everything tasted funny
– even water! Now that’s back to normal too.”
Barnes credits her strong faith in God, as well as the medical
care she’s received, with her current place among cancer
survivors. “Prayer, scripture reading, and trusting
in God took away the fear for me,” she says. “Some
people don’t believe in God, but I do, and along with
the doctors and medicine, that belief has carried me through.
You need to have faith, even in the hard times.”
Having a strong support network around her also made a difference
for Barnes. “They drove me back and forth from Saginaw
for radiation and chemotherapy treatments and took care of
so many things for me – everyone’s been so supportive.”
Meeting other cancer survivors also helped Barnes. “Through
my church I met survivors of other types of cancer–
they told me similar stories about what they went through
with feeling tired, losing their appetites, etc. They made
me understand that I wasn’t alone.”
So what’s next for Azailean Barnes? “I’m
doing well and I’m not afraid anymore. Cancer has brought
me closer to God – another blessing to me. I’m
back to my regular routine, and I feel like I’m doing
great.” She’ll return to U-M in three-month intervals
for check-ups to monitor her condition. In the meantime, she
says, “I feel relieved and at peace.”
To learn more about the Multidisciplinary Pancreatic Clinic
at the University of Michigan Comprehensive Cancer Center
or to make a clinic appointment, call the Cancer AnswerLine
at 1-800-865-1125 or click here.
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