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Clinical Trials Information Guide

Doctor Approved! icon The purpose of this information guide is to help patients newly diagnosed with cancer and their families to find sources of information and support. This list is not meant to be comprehensive, but rather to provide starting points for information seeking. The materials can be found at the Patient Education Resource Center (PERC) at the University of Michigan Comprehensive Cancer Center in room B1-361.

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added 11/07

Brochure

National Cancer Institute. "Taking Part in Clinical Trials: What Cancer Patients Need to Know".

Articles

Cummings, Charmaine. "Informed Consent: Protections for Participants in Clinical Trials". Coping Magazine; Vol. 15, No. 3, May/June, 2001. (p.52).
Explanations of informed consent, rights and protections for clinical trials' participants.

Books

Finn, Robert. Cancer Clinical Trials: Experimental Treatments and How They Can Help You. Sebastopol, CA: O'Reilly, 1999.
This book discusses the structure, administration, and ethics of clinical trials, as well as locating, evaluating and choosing trials.

Mulay, Marilyn. Making the Decision: A Cancer Patient's Guide to Clinical Trials. Sudbury, MA: Jones and Bartlett Publishers, 2002.

Review of the decision-making process, drug development, the business of clinical research and structure of clinical trials, as well as patients' rights, finances and care of the research subject.

Audiovisual Resources

Patient Education Institute. Clinical Trials Interactive Tutorial at Medlineplus.gov
  • Access at: www.medlineplus.gov
  • Click on: "Interactive Tutorials" and select from a list.

    A slide show with voice-over and graphics explains the process and structure of clinical trials. It covers informed consent, protections for participants and how to locate clinical trials. It is possible to turn on a voice over or print a text version.

Web Resources

Clinical Trials section on cancer.gov
NCI page Part of cancer.gov, a service of the National Cancer Institute (NCI), this site provides explanations of the phase structure of clinical trials, the rights of participants, costs, and informed consent. To search trials, access the search form at: www.cancer.gov/search/.

The basic search form searches the database by type of cancer, type of trial and geographical location. The user can choose to view the results in a Patient version, which is short and concise, or a Health Professional version, which is more detailed.

If the basic form retrieves too many hits, the user can click on the "Advanced Search" link and narrow down the search by making more selections such as stage of cancer, treatment-modalities, drug name or phase of trial. It is not possible to do a keyword search, and all terms must be selected from a menu.

A step-by-step guide for searching the NCIs clinical trials database is available by clicking on the link "Help with This From" at the top of the search forms.

Another way to search the same database: ClinicalTrials.gov
This National Library of Medicine site provides access to all of the National Institute of Health trials, clinicaltrials.gov page including the National Cancer Institute database which is also searchable through cancer.gov as described before. If the basic search brings too many hits it is possible to narrow the results down by using the focused search form. The ClinicalTrials.gov search form may be better sometimes because it enables searching by keyword. This feature makes it possible to get more relevant hits when searching ClincalTrials.gov rather than cancer.gov./p>

Coalition of Cancer Cooperative Groups
The Coalition of Cancer Cooperative Groups site covers myths about clinical trials, informed consent, insurance considerations and questions to ask the doctor. The search form includes nine simple questions. The site also includes the full text of the coalition's brochures and fact sheets, frequently asked questions and a glossary.

Locating Clinical Trials at the University of Michigan

Engage the University of Michigan Clinical Trials database
The gateway to research studies at the University of Michigan Health System includes cancer clinical trials. It is possible to use a menu and search by condition or use the search form to search by keyword and other categories.

 

This list does not constitute an endorsement of the information contained in the resources. It is provided for educational purposes only and are not intended for nor engaged in rendering medical advice or professional services. The information provided through this list and its links should not be used for diagnosing or treating a health problem or a disease. It is not a substitute for professional care.

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Speak with a Cancer nurse: 1-800-865-1125
See also:
UMCCC Clinical Trials on the Engage website

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University of Michigan Comprehensive Cancer Center
1500 East Medical Center Drive
Ann Arbor, MI 48109

This site is part of the U-M Health System. The information presented is not a tool for self diagnosis or a substitute for professional care. © 2008 U-M Comprehensive Cancer Center