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Colorectal Cancer Genetics

updated 11/07

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The purpose of this information guide is to help cancer patients and their families to find sources of information on cancer genetics. This list is not meant to be comprehensive, but rather to provide starting points for information seeking. The materials can be found at the Patient Education Resource Center of the University of Michigan Comprehensive Cancer Center located on the B1 level.

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Brochures

National Cancer Institue. "Understanding Gene Testing."

Johns Hopkins University.

This is a series of guides for specific genetic conditions that increase the risk for colorectal cancer. Printable versions are available at the Digestive Disease Library of the Johns Hopkins Medical Institutions Website

Articles

Beil, Laura. "Family Ties: The Individual & Family Decisions Behind Testing for Genetic Cancer Risk". Cure; Vol. 5, No. 3, Special Survivor Issue 2006 (p.52).

Offit, Kenneth. "Genetic screening for cancer survivors" Coping; Vol. 19, No. 6, November/December 2005 (p.14).

Web Resources

Cancer Genetics section on the cancer.gov site (NOTE:: this link will open in a second browser window)

  • Go to: www.cancer.gov
  • Click on "Cancer Information"
  • Click on "Prevention, Genetics, Causes"
  • Click on "Cancer Genetics"
Links to documents on cancer genetics, genetics of colorectal and other cancers and the Cancer Genetics Services Directory; a directory of professionals who provide services related to cancer genetic risk assessment, counseling, and testing.

GeneticHealth.com

Comprehensive explanations of human genetics and genetic counseling including a section on colon cancer genetics.

Genetics Home Reference

This site includes condition summaries that describe the genetic causes and pattern of inheritance for specific cancer types and a handbook that provides illustrated, basic explanation of how genes work and how mutations cause disorders. Has links to genetics resources on the web, and to organizations that provide patient support and advocacy.

Hereditary Colon Cancer on the Johns Hopkins Gastroenterology and Hepatology Resource Center site (NOTE:: this link will open in a second browser window)

  • Go to: www.hopkins-gi.org
  • Click on: Digestive Disease library
  • Click on: Colon and Rectum and select Hereditary Colon Cancer

Understanding Gene Testing - an online tutorial

Colorful illustrations with concise explanations on the role of genes in the process of cancer, genetic testing, emotional and confidentiality issues.

Organizations

Colon Cancer Alliance

Website: www.ccalliance.org
Tel: 877-422-2030

This list does not constitute an endorsement of the information contained in the resources. It is provided for educational purposes only and are not intended for nor engaged in rendering medical advice or professional services. The information provided through this list and its links should not be used for diagnosing or treating a health problem or a disease. It is not a substitute for professional care.

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