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Survivorship > The Pediatric Cancer Late Effects Initiative
For Cancer Center Patients
The purpose of this information guide is to direct patients and
health care professionals to sources of information on cancer and related topics,
it does not constitute an endorsement of the information contained in the resources.
This list is not meant to be comprehensive, but rather to provide starting points for Information seeking.
All listed materials can be found at the Patient Education Resource Center of the University of Michigan
Comprehensive Cancer Center in room B1-361.
Last updated 12/2010
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Leukemia & Lymphoma Society.
National Children's Cancer Society.
National Cancer Institute.
University of Michigan Comprehensive Cancer Center.
Long-Term Follow-Up Study Newsletter
Keene, Nancy, Wendy Hobbie, and Kathy Ruccione. Childhood Cancer Survivors: A Practical Guide to Your Future
2nd ed. Sebastopol: O'Reilly, 2007.
Beyond the Cure
Provided by the National Children's Cancer Society, this site offers extensive information pertaining to all areas of a survivor's life.
Detailed articles offer practical information on medical, educational and financial long-term effects.
Lance Armstrong Foundation. LIVESTRONG SurvivorCare.
Under "Get Help," the "Cancer Support Topics" section of this site contains information on many topics of interest to cancer survivors
including physical, emotional and practical issues. Each topic has detailed information, suggestions of what to do and a list of resources.
Long-Term Follow-Up Program at the University of Michigan Comprehensive Cancer Center
Long-Term Follow-Up Guidelines for Survivors of Childhood,
Adolescent, and Young Adult Cancers.
Developed by the Children's Oncology Group, these guidelines provide recommendations for screening and
management of late effects that may potentially arise as a result of therapeutic exposures used during treatment for pediatric malignancies.
This document is not intended to take the place of the care and attention of your personal physician or other professional medical services. Our aim is to promote active participation in your care and treatment by providing information and education. Questions about individual health concerns or specific treatment options should be discussed with your physician.
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