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When you're in treatment, you long for the day when your treatment is finished. But for many, that day is less triumphant than
they envision. Yes, you may be cancer free, but the worries are still there. And then there are the side effects: the fatigue,
difficulty sleeping, maybe some changes in body image. They may linger, too.
Survivorship experts Sheila
Crowley (right) and Marcia Leonard
talk about getting the right care
for you after cancer treatment
ends.
Visit our
Survivorship Program web pages to learn more.
Put simply, life is just different than it was before.
That's why the University of Michigan Comprehensive Cancer Center has established a new program to help ease the transition
from regular treatment to less frequent follow-up care. Experts Sheila Crowley, Ph.D., R.N., and
Marcia Leonard, R.N., P.N.P., answer your questions.
Q.: The term "cancer survivor" means different things to different people. How do you define it?
Crowley:
There are many different definitions of the term. For the
National Coalition of Cancer Survivors, everyone who has
been diagnosed with cancer is considered a survivor from that day forward. People who are impacted by cancer -- family, friends
and caregivers -- are also considered survivors. At the University of Michigan Comprehensive Cancer Center, our aim is to ease
the transition that follows after active treatment ends. We've found that patients often feel a bit unsettled after their
cancer treatment and not sure how best to move forward after treatment is completed. Our goal is to provide them with an
individualized survivorship care plan, which provides information on how to manage their care in the future, as well as
strategies to optimize their overall health and wellness after cancer treatment.
Q: What types of issues do patients face at this stage in their care?
Crowley:
It depends on what type of cancer and what types of treatment a patient has received. But almost all of our patients
are concerned about recurrence. What can they do to prevent the cancer from returning? Some may be coping with side effects of
treatment, such as fatigue, sleep disturbances, peripheral neuropathies, changes in body image and problems with sexual health-to
name a few. Others are challenged by feelings of anxiety, depression or sadness. And stil others want to be educated about what
they can do to limit or manage long-term treatment effects.
Leonard:
The detrimental effects of treatment are of particular concern in childhood cancer survivors. Because the organs of
children are actively growing during cancer treatment, they are at higher risk for long term complications.
Depending on the treatment children receive, normal growth may be affected. Puberty may be delayed, and the ability to have
children of their own may be problematic. Children who receive treatment that affects the brain are at risk for residual
learning disabilities. The risk of secondary cancers -- although small -- is real.
Q: What does the Cancer Center offer patients who are facing this transition in care?
Leonard:
All children who undergo cancer treatment can be seen in our multidisciplinary
Long-term Follow-up Clinic. Because the medical community's earliest successes in treating cancer were in the pediatric realm,
we've had the benefit of having years of research to guide us in what the long-term needs of our patients are. Our patients meet
with our nurse practitioner, a child psychologist, a dietician and a social worker, who are specialists in childhood cancer
survivor care. The team helps ensure children and adolescents treated for cancer receive the resources they need to grow
into healthy, well-functioning adults.
Crowley:
Survivorship care is a newer concept for adults. We are piloting program with breast cancer and prostate cancer patients to
determine how best to address their concerns before expanding the program to other cancer populations. The Cancer Center's
goal is to expand programs to benefit all cancer patients, but in the meantime, we have less formal means of connecting
patients with helpful resources. We've found that a good starting point is an educational booklet from the
National Cancer Institute called
Facing Forward.
Q: What should people entering this phase of treatment do to ensure they get the type of care they need?
Crowley:
The first thing to do is to talk with your health-care team about a summary of your treatment. Discuss which long-term effects
you should be concerned about as well as their recommendations for routine follow-up care and screening tests. Take this
information to your primary-care doctor and have a discussion about it. If you are experiencing anxiety, sadness or depression,
consider making an appointment with the Cancer Center's
PsychOncology Program. Our Patient & Family Support Services are
available during and after treatment. Also consider seeking out help from a peer counselor or using one of the many services
offered by our Complementary Therapies Program.
Leonard:
The goal is to educate yourself and your family so you can be fully prepared if problems do arise in the future. While it's true
that cancer treatment can have long-term effects, it's equally true that getting help for these effects earlier rather than later
can have long-lasting impact on quality of life as well.
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