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The Engaged Patient

10 things you can do to take charge of your medical care, con't.

The e-patient movement is not only helping to empower patients to be more active partners in their care, but offering them emotional support as they connect with other patients who have similar experiences.

-- Alexandra Sarkozy, Patient Education Resource Center librarian

Connect with resources to help you become an engaged patient.
We've offered a few tips here to help you start thinking like an e-patient.

1. Assume responsibility.

Think about the last car you bought. You didn't hand that decision over to the salesman, did you? Only you know what medical choices are right for you. It's up to you to get the information you need so that you can get the care you need.

2. Communicate with your health care team.

Your doctor may be the expert on treating cancer, but you're the expert on how you feel. Speak up and be honest if things aren't feeling right. Become comfortable with asking questions. Consider taking notes so you can go over them again later.

3. Don't be afraid to ask for second opinions.

All too often, people are worried about offending their doctors. Don't be. This is a routine part of medical care, and you have every right to get the information you need before making a medical decision.

4. Educate yourself.

Learning about your condition can help you have better discussions with your doctors. Sifting through the vast amount of information online can be difficult -- particularly since some online information isn't credible -- so consider visiting the Cancer Center's Patient Education Resource Center. The staff can help you find the information you need.

5. Learn about clinical trials.

Participating in a research study may be the right choice for some people with cancer. The U-M Cancer Center offers many opportunities. Talk to your doctor or visit UMClinicalStudies.org/cancer to find out more

Seek support.

Patients often learn from other patients. Consider joining an online support group or forum, such as those hosted by the Association of Cancer Online Resources, to glean information from others with similar experiences. Keep in mind that every person is not the same, though, and that any recommendations should be vetted by your health-care team before you pursue them.

7. Be prepared.

Make lists of questions before your appointments. If you read about a particular study that you think is relevant to your care, print it out and bring it with you.

8. Keep a patient tool kit.

Keep all medical records and notes in a single, organized folder. The U-M Cancer Center provides every new patient with a filing box that features helpful information for navigating your care. In addition, consider keeping a diary to track how you are feeling.

9. Find your inner mama lion.

Many of the best patient advocates are mothers. They will find a way to do what needs to be done for their children. Adopt a similar attitude about your own care.

10. Enlist help.

As much as you may want to be your own advocate, it can be difficult -- particularly if you're just not feeling up to it. Ask a trusted family member or friend to attend appointments with you and help you fill this role.

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This article first appeared in the Fall, 2011 issue of Thrive.

Print Thrive Magazine; Fall, 2011