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Last updated 6/2006
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Kazak, Anne E. "Childhood Cancer Survivorship: Post-Traumatic Stress Can Affect Both
Children and Their Parents". (
Coping; Vol. 16, no. 1 January/February 2002.
Keene, Nancy. "Comprehensive Follow-Up Programs: A Necessity Not luxury". (Candlelighters; Spring 2002).
Keene, Nancy, Hobbie Wendy & Ruccione, Kathy.
Childhood Cancer Survivors: a Practical Guide to Your Future.
Sebastopol: O'Reilly, 2000.
Beyond the Cure
Provided by the National Children's Cancer Society this site offers extensive information pertaining to all
areas of a survivor’s life. Detailed articles offer practical information on medical, educational and financial
long-term effects.
Lance Armstrong Foundation. LiveStrong.
The Help & Support section of this site contains information on many topics of interest to cancer survivors
including physical, emotional and practical issues. Each topic has detailed information, suggestions of what
to do and a list of resources.
Long-Term Follow-Up Study
The site of the Long-Term Follow-Up Study, a collaborative, multi-institutional study, funded by the National Cancer
Institute, of individuals who survived five or more years after treatment for childhood cancer.
Long-Term Follow-Up Guidelines for Survivors of Childhood,
Adolescent, and Young Adult Cancer
Developed by the Children’s Oncology Group, these guidelines provide recommendations for screening and management
of late effects that may potentially arise as a result of therapeutic exposures used during treatment for pediatric
malignancies.
Outlook - Life Beyond Childhood Cancer
Supported by the University of Wisconsin Comprehensive Cancer Center, this is a comprehensive
source of information on practical, medical and emotional issues affecting childhood cancer survivors.
PED-ONC SURVIVORS is an online discussion
group for survivors of childhood cancer, hosted by the
Association for Cancer Online
Resources ACOR.
You may subscribe to the email group from OncoLink’s automated listserv subscriber.
This document is not intended to take the place of the care and attention of your personal physician or other professional medical services. Our aim is to promote active participation in your care and treatment by providing information and education.
Questions about individual health concerns or specific treatment.
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