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Resources: BMT Information Guide

Doctor Approved! icon The purpose of this information guide is to direct patients and health care professionals to sources of information on cancer and related topics, it does not constitute an endorsement of the information contained in the resources. This list is not meant to be comprehensive, but rather to provide starting points for Information seeking. All listed materials can be found at the Patient Education Resource Center of the University of Michigan Comprehensive Cancer Center in room B1-361.

Last update 12/2010

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Brochures

Bone Marrow Foundation.

To request a free copy contact the Bone Marrow Foundation at: (800) 365-1336. Available in English and Spanish.

National Marrow Donor Program.

For your free copy of these publications contact the NMDP at: 888-999-6743 or access www.marrow.com (English and Spanish).

"A Guide to Protecting Your Health after Transplant: Recommended Tests and Procedures"

Separate versions for allogeneic and autologous transplants discuss guidelines for long-term follow-up care after a marrow, peripheral blood stem cell (PBSC) or cord blood transplant

The Leukemia & Lymphoma Society:.

BMTinfonet: "Eating Well, Living Well after Transplant"

Newsletter

Blood and Marrow Transplant Information Network. Blood and Marrow Transplant Newsletter.

Audiovisual Resources

National Marrow Donor Program (MMDP):
  • Discovery to Recovery: A Child's Guide to Bone Marrow Transplant. (DVD) NMDP, Minneapolis, MN, [2004]. English, Spanish and Mandarin.
  • Forward! Living Life After Transplant. (DVD) NMDP, Minneapolis, MN, [2004]. English and Spanish. For teens and young adults.
  • Paths to Progress: Understanding Blood Stem Cell Transplants. (CD) NMDP, Minneapolis, MN, [2004]. English, Spanish and Mandarin.
  • Words of Experience. Stories of Hope. A Guide to Marrow and Cord Blood Transplant for Patients and Caregivers. (DVD) NMDP, Minneapolis, MN, [2009]. English and Spanish.

For a free copy contact the NMDP.

BMTinfonet. Celebrating a Second Chance at Life. Learn how to protect your health after transplant. A two DVD set.

National Bone Marrow Transplant Link. New Normal: Life After Bone Marrow/Stem Cell Transplant: A Compelling Story Of Six Transplant Survivors. (DVD, VHS) Southfield, MI: Sue Marx Films, Inc., 2001. This video can also be viewed on YouTube.

Books

Carrier, Ewa. 100 Questions & Answers about Bone Marrow and Stem Cell Transplantation. Sudbury, MA: Jones and Bartlett, 2004.

Fairview-University Blood and Marrow Transplant Services. Blood and Marrow Transplantation: A Patient's Guide to Hematopoietic Stem Cell Transplantation. Minneapolis, MN: Fairview Press, 2004.

National Bone Marrow Transplant Link. Caregivers' Guide for Bone Marrow/Stem Cell Transplant. Southfield, MI: National Bone Marrow Transplant Link, 2003.

National Bone Marrow Transplant Link. Bone Marrow Transplant Resource Guide: Friends Helping Friends. Southfield, MI: National Bone Marrow Transplant Link, 2001.

National Bone Marrow Transplant Link. Survivorship Guide for Bane Marrow/Stem Cell Transplant: Coping with Late Effects. Southfield, MI: National Bone Marrow Transplant Link, 2009.

Stewart, Susan K. Autologous Stem Cell Transplants: A Handbook for Patients. 3nd ed. Highland Park, IL: BMT Newsletter, 2007.

For kids

Weinstein-Stern, Deborah. Mira's Month. Highland Park, IL: BMT Newsletter, 1994.

A story of a four year old girl whose mom is about to go through a bone marrow transplant.

Crowe, Karen. Me and My Marrow: A Kid's Guide to Bone Marrow Transplants. Deerfield, IL: Fugisawa Healthcare, Inc., 1999.

Explanations and advice on coping with a BMT for ages 10-18.

Lilleby, Kathryn U. Steve's New Blood. Pittsburgh, PA: Oncology Nursing Press, 2000.

Two text versions and lovely illustrations explain the process of a bone marrow transplant. A large print version is for kids ages 6-10, and a small print version is intended for 10-17 year olds. Young children can follow the illustrations.

Web Resources

Blood & Marrow Transplantation Clinic at the U-M Comprehensive Cancer Center
Detailed information about bone marrow transplantation and the U-M clinic including a patient's guide, a glossary and BMT success stories.

BMTinfonet

The Blood and Marrow Transplant Information Network site offers a resource directory, a drug database and a news bulletin.

Bone Marrow Foundation

This website has information about the resources, programs and services provided by this patient support organization. A database of medical articles, an archive of experts' answers to patients' questions and comprehensive listings of organizations and transplants centers are also available.

National Bone Marrow Transplant Link

The main feature of this site is a digital library that contains citations to hundreds of journal articles, booklets and reference materials, as well as comprehensive links to additional online information. The site also includes Adobe Acrobat (.pdf) files of the NBMTLink publications listed in the Books Section.

National Marrow Donor Program

Information for donors and recipients of bone marrow, including .pdf files of various publications about the transplantation process, financial and insurance assistance.

U-M Comprehensive Cancer Center Blood & Marrow Transplantation Clinic

Patient Support Organizations

The Bone Marrow Foundation
1-212-838-3029 or 1-800-365-1336

National Bone Marrow Transplant Link
1-800-LINK-BMT (800-546-5268)

 

This document is not intended to take the place of the care and attention of your personal physician or other professional medical services. Our aim is to promote active participation in your care and treatment by providing information and education. Questions about individual health concerns or specific treatment options should be discussed with your physician.

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