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Resources: BMT Information Guide

The purpose of this information guide is to help newly diagnosed Stomach Cancer patients and their families to find sources of information and support. Doctor Approved! icon This list is not meant to be comprehensive, but rather to provide starting points for information seeking. The materials can be found at the Patient Education Resource Center of the University of Michigan Comprehensive Cancer Center located on the B1 level.

Last update 11/07

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Brochures

National Marrow Donor Program. "Step One - describing the decisions that need to be made when considering a Bone Marrow Transplant".

National Marrow Donor Program. "Step Two - A detailed look a the transplant process including information on post- transplant care".

You can also order a free copy of these publications by contacting the NMDP at: 888-999-6743. Available in English and Spanish.

Guide to Protecting Your Health after Transplant: Recommended Tests and Procedures

Separate versions for allogeneic and autologous transplants discuss guidelines for long-term follow-up care after a marrow, peripheral blood stem cell (PBSC) or cord blood transplant.

The Leukemia & Lymphoma Society. Blood and Marrow Stem Cell Transplantation [note: opens as a .pdf document]

Newsletter

Blood and Marrow Transplant Information Network. Blood and Marrow Transplant Newsletter.

Article

Williams, Susan. "Inside Stem Cells: A Look at Blood and Marrow Transplantation". Cure; Vol. 3, No. 2, Summer 2004. (p.41).

Audiovisual Resources

National Marrow Donor Program. Discovery to Recovery: A Child's Guide to Bone Marrow Transplant. (DVD) NMDP, Minneapolis, MN, [2004]. English, Spanish and Mandarin. For your free copy go to the Request Patient Materials webpage on the NMDP website.

National Marrow Donor Program. Living Life After Transplant. (DVD) NMDP, Minneapolis, MN, [2004]. English and Spanish. For your free copy go to the Request Patient Materials webpage on the NMDP website.

National Marrow Donor Program. Paths to Progress: Understanding Blood Stem Cell Transplants. (CD) NMDP, Minneapolis, MN, [2004]. English, Spanish and Mandarin. For your free copy go to the Request Patient Materials webpage on the NMDP website.

National Bone Marrow Transplant Link. New Normal: Life After Bone Marrow/Stem Cell Transplant: A Compelling Story Of Six Transplant Survivors. (DVD, VHS) Southfield, MI: Sue Marx Films, Inc., 2001.

Books

Carrier, Ewa. 100 Questions & Answers about Bone Marrow and Stem Cell Transplantation. Sudbury, MA: Jones and Bartlett, 2004

Fairview-University Blood and Marrow Transplant Services. Blood and Marrow Transplantation: A Patient's Guide to Hematopoietic Stem Cell Transplantation. Minneapolis, MN: Fairview Press, 2004.

National Bone Marrow Transplant Link. Bone Marrow Transplant Resource Guide: Friends Helping Friendsa. Southfield, MI: National Bone Marrow Transplant Link, 2001. A printable version is available online

National Bone Marrow Transplant Link. Caregivers' Guide for Bone Marrow/Stem Cell Transplant. Southfield, MI: National Bone Marrow Transplant Link, 2003. A printable version is available online

Stewart, Susan K. Autologous Stem Cell Transplants: A Handbook for Patients. 3nd ed. Highland Park, IL: BMT Newsletter, 2007.

Stewart, Susan K. Bone Marrow and Blood Stem Cell Transplants: A Guide for Patients. Highland Park, IL: Blood & Marrow Transplant Information Network, 2002.

Stronach, Keren. Survivors' Guide to a Bone Marrow Transplant: What to Expect and How to Get Through it. Southfield, MI: National Bone Marrow Transplant Link, 2002. 2nd Ed. A printable version is available online at the National Bone Marrow Transplant site.

For kids whose parents are undergoing BMT:

Weinstein-Stern, Deborah. Mira's Month. Highland Park, IL: BMT Newsletter, 1994.

A story of a four year old girl whose mom is about to go through a bone marrow transplant. May be read online at: www.bmtinfonet.org/mm/mira.html.

For kids undergoing BMT:

Crowe, Karen. e and My Marrow: A Kid's Guide to Bone Marrow Transplants. Deerfield, IL: Fugisawa Healthcare, Inc., 1999.

Explanations and advice on coping with a BMT for ages 10-18. A printable version is available at: www.astellas.us/docs/meandmymarrow.pdf [note: opens as a .pdf document].

Lilleby, Kathryn U. Steve's New Blood. Pittsburgh, PA: Oncology Nursing Press, 2000.

Two text versions and lovely illustrations explain the process of a bone marrow transplant. A large print version is for kids ages 6-10, and a small print version is intended for 10-17 year olds. Young children can follow the illustrations.

Web Resources

BMTinfonet
The Blood and Marrow Transplant Information Network site offers a resource directory, a drug database and a news bulletin.

Bone Marrow Foundation

This website has information about the resources, programs and services provided by this patient support organization. A database of medical articles, an archive of experts' answers to patients' questions and comprehensive listings of organizations and transplants centers are also available.

National Bone Marrow Transplant Link
The main feature of this site is a digital library that contains citations to hundreds of journal articles, booklets and reference materials, as well as comprehensive links to additional online information. The site also includes Adobe Acrobat (.pdf) files of the NBMTLink publications listed in the Books Section.

National Marrow Donor Program

Information for donors and recipients of bone marrow, including .pdf files of various publications about the transplantation process, financial and insurance assistance.

Email Groups (Listserv)

BMT-TALK is an e-mail discussion group for patients undergoing a bone marrow transplant and their families, hosted by the Association of Cancer Online Resources ACOR.

Organizations

The Bone Marrow Foundation

70 East 55th Street
20th Floor
NY, NY 10022

1-212-838-3029 or 1-800-365-1336

National Bone Marrow Transplant Link

20411 W. 12 Mile Rd.
Suite 108
Southfield, MI 48076

1-800-LINK-BMT (800-546-5268)

 

This list does not constitute an endorsement of the information contained in the resources. It is provided for educational purposes only and are not intended for nor engaged in rendering medical advice or professional services. The information provided through this list and its links should not be used for diagnosing or treating a health problem or a disease. It is not a substitute for professional care.

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