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The purpose of this information guide is to help patients newly diagnosed with an adult sarcoma and their families find sources of information and support. This list is not meant to be comprehensive, but rather to provide starting points for information seeking. The materials can be found at the Patient Education Resource Center of the University of Michigan Comprehensive Cancer Center in room B1-361.
Last updated 7/07
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Caley, Beverly A.
"Singling Out Sarcoma: Why Everyone Should Care about This Uncommon Disease".
(
Cure; Vol. 3, No. 2, Summer, 2004, p.57).
American Academy of Orthopaedic Surgeons
Sarcoma Alliance
Guidance for newly diagnosed patients and information on sarcomas.
Sarcoma Foundation of America
The "Patient Resources" section has information about different types of sarcoma, a Clinical Trials Resource
Center and links to other relevant sites.
Sarcoma Information from the University of Michigan Comprehensive Cancer Center
American Cancer Society site detailed guides:
- All About Sarcoma - Adult Soft Tissue Cancer
- All About Bone Cancer
- All About Gastrointestinal Stromal Tumors
To access the guides go www.cancer.org
[NOTE: this link will open in a second browser window]
- Click on "Choose a Cancer Topic
- Select type from the list and click "Go"
Cancer.gov
- Bone Cancer menu
- Soft tissue Sarcoma menu
Go to
www.cancer.gov, [NOTE: this link will open in a second browser window]
click on the link to "A to Z List of Cancers" and select from the menu.
Understanding Primary Bone Cancer
Understanding Soft Tissue Sarcomas
NCCN Clinical Practice Guidelines in Oncology
The Association of Cancer Online Resources hosts a number of email discussion groups for adult sarcoma patients and families:
- SARCOMA is an e-mail discussion group for
Sarcoma patients and families.
-
SARCOMA-MED is an e-mail discussion group for medical questions about Sarcomas.
- L-M-SARCOMA
is an e-mail discussion group for Leiomyosarcoma patients and families.
- L-SARCOMA is an e-mail discussion group
for liposarcoma patients and families.
- DESMOID is an e-mail discussion group for
desmoid tumor patients and families.
Sarcoma Alliance
Tel. 415-381-7236
The Life Raft Group (for GIST patients)
Tel. 973-837-9092
This list does not constitute an endorsement of the information contained in the resources. It is provided for educational purposes only and are not intended for nor engaged in rendering medical advice or professional services. The information provided through this list and its links should not be used for diagnosing or treating a health problem or a disease. It is not a substitute for professional care.
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