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Pediatric / Childhood Cancers Resources
The purpose of this information guide is to help parents of children newly diagnosed with Wilm's Tumor
find sources of information and support. This list is not meant to be comprehensive, but rather to provide
starting points for information seeking. The materials can be found at the Patient Education Resource Center
of the University of Michigan Comprehensive Cancer Center in room B1-361.
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Last updated 11/07
Kidney Cancer Association.
Wilms' Tumor: What Now?
A practical guide for parents of children with Wilm’s tumor, it covers medical and psycho-social issues.
A printable version is available at:
www.curekidneycancer.org (registration required)
Leukemia & Lymphoma Society.
"Learning and Living with Cancer" - note: opens as a .pdf document.
National Cancer Institute. "Young People With
Cancer: A Handbook for Parents".
Carroll, William L., and Jessica B. Reisman.
100 Questions & Answers about Your Child's Cancer.
Sudbury, MA: Jones and Bartlett Publishers, 2005.
Janes-Hodder, Honna & Keene, Nancy. Childhood Cancer: A Parent's Guide to Solid Tumor Cancers. 2nd.
Edition. Sebastopol, CA: O'Reilly, 2002.
Woznick, Leigh A., and Carol D. Goodheart. Living with Childhood Cancer: A Practical Guide to Help Parents Cope.
1st ed. Washington, DC: American Psychological Association, 2002.
All About Wilms' Tumor
- Go to the American Cancer Society
(NOTE: this link will open in a second browser window for your convenience)
- Click on "Choose a Cancer Type or Topic"
- Select "Wilms' Tumor" from list and click "Go"
- Click on "All About Wilms' Tumor"
CureSearch. Kidney and Wilms’ Tumor
- Go to the CureSearch site at: www.curesearch.org
(NOTE: this link will open in a second browser window for your convenience)
- Click on "Newly Diagnosed"
- Select " Kidney and Wilms’ Tumor" from list and click "Submit"
Kidney Cancer Association
The Kidney Cancer Association addresses the needs of children and adults with kidney cancer. A free registration
enables access to a wealth of information about kidney cancer, including full-text of brochures and publications,
detailed information about dealing with kidney cancer, video presentations by medical experts and leading
researchers, and access to a clinical trials database, news and support services offered by this organization.
National Cancer Institute. Wilms' Tumor and Other Childhood Kidney Tumors.
- Go to the National Cancer Institute site at: www.cancer.gov
(NOTE: this link will open in a second browser window for your convenience)
- Under "All Cancer Types" (under "Types of Cancer") Click on "A to Z list of Cancers"
- Select "Wilms' Tumor and Other Childhood Kidney Tumors" from list
The National Wilms Tumor Study
The National Wilms’ Tumor Study Group is a multi-institutional study of the treatment of patients with Wilms
tumor. The site offers information for parents of children who are undergoing treatment for Wilms’ tumor and
for adult survivors of the disease.
People Living With Cancer. Wilms' Tumor, Childhood Cancer.
- Go to the People Living With Cancer site at: www.plwc.org
(NOTE: this link will open in a second browser window for your convenience)
- Under "PLWC Guides to Cancer" Select: "Wilms' Tumor, Childhood Cancer"
WILMS-KIDS is an email discussion group for families affected by Wilms’ tumor.
Candlelighters
Web site:
www.candlelighters.org
Phone: 800-366-2223
The National Children's Cancer Society
Web site: http://nationalchildrenscancersociety.com
Phone: 800-5-FAMILY
This list does not constitute an endorsement of the information contained in the resources.
It is provided for educational purposes only and are not intended for nor engaged in rendering medical
advice or professional services. The information provided through this list and its links should not be
used for diagnosing or treating a health problem or a disease. It is not a substitute for professional care.
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