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Resources Childhood Cancer
Rhabdomyosarcoma Information Guide

Doctor Approved! icon The purpose of this information guide is to direct patients and health care professionals to sources of information on cancer and related topics, it does not constitute an endorsement of the information contained in the resources. This list is not meant to be comprehensive, but rather to provide starting points for Information seeking. All listed materials can be found at the Patient Education Resource Center of the University of Michigan Comprehensive Cancer Center in room B1-361.

Last update 08/09

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Brochures

National Cancer Institute. "Young People With Cancer: A Handbook for Parents".

Leukemia & Lymphoma Society. "Learning and Living with Cancer" [note: this opens as a .pdf document].

Books

Carroll, William L., and Jessica B. Reisman. 100 Questions & Answers about Your Child's Cancer. Sudbury, MA: Jones and Bartlett Publishers, 2005.

Howell, Della L. My child Has Cancer: a Parent's Guide to Diagnosis, Treatment, and Survival. Westport, CT,: Praeger, 2008.

Parker, Robert; Trezza Debra. Understanding childhood cancers. Jackson, Miss.: University Press of Mississippi, 2007.

Web Resources

American Cancer Society All about Rhabdomyosarcoma Cancer:
  • Go to the American Cancer Society site
    (NOTE: this link will open in a second browser window for your convenience):
  • Under "Choose a cancer topic"
  • Select "Rhabdomyosarcoma" from the list and click "Go"
  • Click on: "All About Retinoblastoma" (an eye cancer)

CureSearch

Information on rhabdomyosarcoma for children and parents is available on this site.

KidsHealth.org. Rhabdomyosarcoma.

Select the Parent site, Teen site or kids Site and enter “Rhabdomyosarcoma” in the search box. This site covers medical and emotional issues about neuroblastoma.

National Cancer Institute Rhabdomyosarcoma, childhood

  • Go to the National Cancer Institute site
    (NOTE: this link will open in a second browser window for your convenience):
  • Under "All Cancer Types" click on "A to Z list of Cancers"
  • Select "Rhabdomyosarcoma, childhood" from the list

Email Lists (Listserves)

RHABDO-KIDS is an email discussion group for parents of children with Rhabdomyosarcoma.

Ped-Onc is an email discussion group for all types of pediatric cancers.

Organizations

Candlelighters
Phone: 800-366-2223

The National Children's Cancer Society
Phone: 800-5-FAMILY (800-532-6459)

Sarcoma Alliance
Phone: 415-381-7236

This document is not intended to take the place of the care and attention of your personal physician or other professional medical services. Our aim is to promote active participation in your care and treatment by providing information and education. Questions about individual health concerns or specific treatment options should be discussed with your physician.

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University of Michigan Comprehensive Cancer Center
1500 East Medical Center Drive
Ann Arbor, MI 48109

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