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> Cancers of the Bone Resources
The purpose of this information guide is to help parents of newly diagnosed children with Rhabdomyosarcoma find sources of
information and support. This list is not meant to be comprehensive, but rather to provide starting points for
information seeking. The materials can be found at the Patient Education Resource Center (PERC) of the University
of Michigan Comprehensive Cancer Center in room B1-361.
Last update 11/07
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National Cancer Institute.
"Young People With
Cancer: A Handbook for Parents".
Leukemia & Lymphoma Society.
"Learning and Living with Cancer" [note: this opens as a .pdf document].
Carroll, William L., and Jessica B. Reisman.
100 Questions & Answers about Your Child's Cancer.
Sudbury, MA: Jones and Bartlett Publishers, 2005.
Janes-Hodder, Honna & Keene, Nancy. Childhood Cancer: A Parent's Guide to Solid Tumor Cancers. 2nd.
Edition. Sebastopol, CA: O'Reilly, 2002.
Parker, Robert; Trezza Debra. Understanding childhood cancers. Jackson, Miss.: University Press of
Mississippi, 2007.
Woznick, Leigh A., and Carol D. Goodheart. Living with Childhood Cancer: A Practical Guide to Help Parents Cope.
1st ed. Washington, DC: American Psychological Association, 2002.
American Cancer Society
All about Rhabdomyosarcoma Cancer:
- Go to the American Cancer Society site
(NOTE: this link will open in a second browser window for your convenience):
- Under "Choose a cancer type"
- Select "Rhabdomyosarcoma" from the list and click "Go"
- Click on: "All About Retinoblastoma" (an eye cancer)
CureSearch
Information on rhabdomyosarcoma for children and parents is available on this site.
National Cancer Institute Rhabdomyosarcoma, childhood
- Go to the National
Cancer Institute site
(NOTE: this link
will open in a second browser window for your convenience):
- Under "All Cancer Types" click on "A to Z list of Cancers"
- Select "Rhabdomyosarcoma, childhood" from the list
People Living With Cancer. Rhabdomyosarcoma, Childhood
- Go to the People Living With Cancer site at: www.plwc.org
(NOTE: this link
will open in a second browser window for your convenience):
- Under "PLWC Guides to Cancer" Select: "Rhabdomyosarcoma, Childhood"
RHABDO-KIDS is an email discussion group for
parents of children with Rhabdomyosarcoma.
Ped-Onc is an email discussion group for all
types of pediatric cancers.
Candlelighters
Phone: 800-366-2223
The National Children's Cancer Society
Phone: 800-5-FAMILY (800-532-6459)
Sarcoma Alliance
Phone: 415-381-7236
This list does not constitute an endorsement of the information
contained in the resources. It is provided for educational
purposes only and are not intended for nor engaged in rendering
medical advice or professional services. The information provided
through this list and its links should not be used for diagnosing
or treating a health problem or a disease. It is not a substitute
for professional care.
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