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The purpose of this information guide is to direct patients and
health care professionals to sources of information on cancer and related topics,
it does not constitute an endorsement of the information contained in the resources.
This list is not meant to be comprehensive, but rather to provide starting points for Information seeking.
All listed materials can be found at the Patient Education Resource Center of the University of Michigan
Comprehensive Cancer Center in room B1-361.
Last update 12/2010
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Leukemia & Lymphoma Society.
"Learning and Living with Cancer" [PDF]
National Cancer Institute
Brackman, Jeanne Munn.
Children with Cancer: A Reference Guide for Parents. New York: Oxford University Press, 2010.
Carroll, William L., and Jessica B. Reisman. 100 Questions & Answers about Your Child's Cancer.
Sudbury, MA: Jones and Bartlett Publishers, 2005.
Howell, Della L. My child Has Cancer: a Parent's Guide to Diagnosis,
Treatment, and Survival. Westport, CT,: Praeger, 2008.
Parker, Robert.; Trezza, Debra. Understanding childhood cancers. Jackson, MS: University Press of
Mississippi, 2007.
American Cancer Society -
Retinoblastoma
- Access the American Cancer Society website: www.cancer.org
- Click on "Learn About Cancer"
- Select "Retinoblastoma" from list and click "Go"
American Society of Clinical Oncology -
Retinoblastomaa - Childhood
- Access the American Society of Clinical Oncology- Cancer.Net website: www.cancer.net
- Click on "Cancer Types"
- "Click on "R-Z" and select "Retinoblastoma - Childhood"
CureSearch - Retinoblastoma
This site has sections on retinoblastoma at different stages.
- Access the CureSearch website: www.curesearch.org
- Click on "For Parents/Families" or "For Patients"
- Select a stage from "Newly Diagnosed" to "After Treatment"
- Select "Osteosarcoma" from the list
Eye Cancer Network - Retinoblastoma
An overview of the genetics and treatment of retinoblastoma. This site has color illustrations, articles about various treatments,
frequently asked questions and an international physician list.
- Access the Eye Cancer Network website: www.eyecancer.com
- Click on "Patient Info"
- "Click on "Conditions"
- Under "Retinal Tumors" click on "Retinoblastoma"
National Cancer Institute Retinoblastoma
- Access the National Cancer Institute website: www.cancer.gov
- Click on "Types of Cancer"
- Click on "N-R" and select "Retinoblastoma"
National Eye Institute - Retinoblastoma
- Access the National Eye Institute website: www.nei.nih.gov
- Click on "Health Information"
- Under "A-Z Diseases and Disorders," click on "Retinoblastoma"
Retinoblastoma.com
The Parent's Guide to Understanding Retinoblastoma is a detailed overview with color illustrations that includes an explanation of the eye's anatomy, genetics of retinoblastoma, treatment and long term consequences of the illness.
Candlelighters
The National Children's Cancer Society
Retinoblastoma International
This document is not intended to take the place of the care and attention of your personal physician or other professional medical services. Our aim is to promote active participation in your care and treatment by providing information and education. Questions about individual health concerns or specific treatment options should be discussed with your physician.
Candlelighters -
www.candlelighters.org
Phone: 800-366-2223
The National Children's Cancer Society -
http://nationalchildrenscancersociety.com
Phone: 800-5-FAMILY (800-532-6459)
Retinoblastoma International - www.retinoblastoma.net
Phone: 323-669-2299
This document is not intended to take the place of the care and attention of your personal physician or other professional medical services.
Our aim is to promote active participation in your care and treatment
by providing information and education.
Questions about individual health concerns or specific treatment options should be discussed with your physician.
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