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The purpose of this information guide is to help parents of newly diagnosed children find sources of information and support. This list is not meant to be comprehensive, but rather to provide starting points for information seeking. The materials can be found at the Patient Education Resource Center (PERC) of the University of Michigan Comprehensive Cancer Center in room B1-361.
Last updated 11/2010
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Leukemia & Lymphoma Society.
"Learning and Living with Cancer" [PDF].
National Cancer Institute.
Brackman, Jeanne Munn.
Children with Cancer: A Reference Guide for Parents. New York: Oxford University Press, 2010.
Carroll, William L., and Jessica B. Reisman. 100 Questions & Answers about Your Child's Cancer.
Sudbury, MA: Jones and Bartlett Publishers, 2005.
Howell, Della L. My Child Has Cancer: A Parent's Guide to Diagnosis, Treatment, and Survival. Westport, CT: Praeger, 2008.
Parker, Robert.; Trezza, Debra. Understanding childhood cancers. Jackson,
MS: University Press of Mississippi, 2007.
American Cancer Society -
All About Ewing's Family of Tumors.
- Access the American Cancer Society website at: www.cancer.org
- Click on "Learn About Cancer"
- Select "Ewing's Family of Tumors" and click "Go"
- Click on ""Ewing Family of Tumors Detailed Guide"
American Society of Clinical Oncology -
Ewing's Sarcoma, Childhood
- Access the American Society of Clinical Oncology website at: cancer.net
- Click on "Cancer Types"
- Click on "D-H" and select "Ewings Family of Tumors - Childhood"
CureSearch - Ewing Sarcoma
- Access the CureSearch website at: www.curesearch.org
- Click on "For Parents/Families" or "For Patients"
- Select a stage from "Newly Diagnosed" to "After Treatment"
- Select "Ewing Sarcoma" from list and click "Submit"
National Cancer Institute. Ewing Family of Tumors
- Access the National Cancer Institute website at: www.cancer.gov
- Under "Types of Cancer"
- Click on "E-K" and select "Ewing Sarcoma Family of Tumors"
The Nemours Foundation - Ewing Sarcoma
- Access the Nemours Foundation website at: www.kidshealth.org/parent
- Click on "Medical Problems"
- Scroll down and click on "Cancer & Tumors"
- Click on "Ewing Sarcoma
Sarcoma Foundation of America
New and Information about different types of sarcoma and links to other relevant sites.
Candlelighters
The National Children's Cancer Society
Sarcoma Alliance
This document is not intended to take the place of the care and attention of
your personal physician or other professional medical services.
Our aim is to promote active participation in your care and treatment
by providing information and education.
Questions about individual health concerns or specific treatment options
should be discussed with your physician.
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