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The purpose of this information guide is to help parents of newly diagnosed children find sources of information and support. This list is not meant to be comprehensive, but rather to provide starting points for information seeking. The materials can be found at the Patient Education Resource Center (PERC) of the University of Michigan Comprehensive Cancer Center in room B1-361.
Last updated 11/07
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Leukemia & Lymphoma Society.
"Learning and Living with Cancer" [
note: this opens as a .pdf document].
National Cancer Institute. "Young People With
Cancer: A Handbook for Parents".
Carroll, William L., and Jessica B. Reisman.
100 Questions & Answers about Your Child's Cancer.
Sudbury, MA: Jones and Bartlett Publishers, 2005.
Janes-Hodder, Honna & Keene, Nancy. Childhood Cancer: A Parent's Guide to Solid Tumor Cancers. 2nd.
Edition. Sebastopol, CA: O'Reilly, 2002.
Parker, Robert; Trezza Debra. Understanding childhood cancers. Jackson, Miss.: University Press of
Mississippi, 2007.
Woznick, Leigh A., and Carol D. Goodheart. Living with Childhood Cancer: A Practical Guide to Help Parents Cope.
1st ed. Washington, DC: American Psychological Association, 2002.
American Cancer Society
All About Ewing's Family of Tumors.
- Go to the
American Cancer Society site
(NOTE: this link will open in a second browser window for your
convenience):
- Click on "Choose a Cancer Type or Topic"
- Select "Ewing's Family of Tumors" from list and click "Go"
- Click on "All About Ewing's Family of Tumors"
Sarcoma Foundation of America
New and Information about different types of sarcoma and links to other relevant sites.
CureSearch. Ewing Sarcoma
- Go to the CureSearch site at www.curesearch.org
(NOTE: this link will open in a second browser window for your
convenience):
- Click "Newly Diagnosed"
- Select "Ewing's Sarcoma" from list and click "Submit"
National Cancer Institute. Ewing's Family of Tumors
- Go to the National Cancer Institute site at www.cancer.gov
(NOTE: this link will open in a second browser window for your
convenience):
- Under "All Cancer Types" Click on "A to Z list of Cancers"
- Select "Ewing's Family of Tumors" from list
People Living With Cancer. Ewing's Sarcoma, Childhood
- Go to the People Living With Cancer site at: www.plwc.org
(NOTE: this link will open in a second browser window for your
convenience):
- Under "PLWC Guides to Cancer" Select: "Ewing's Sarcoma, Childhood"
E-SARCOMA is an email discussion group for parents of children diagnosed
with Ewing's Sarcoma, hosted by the
Association
of Cancer Online Resources (ACOR).
Candlelighters
The National Children's Cancer Society
Sarcoma Alliance
This list does not constitute an endorsement of the information contained in the resources. It is provided
for educational purposes only and are not intended for nor engaged in rendering medical advice or professional
services. The information provided through this list and its links should not be used for diagnosing or treating
a health problem or a disease. It is not a substitute for professional care.
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