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Resources Childhood Cancer:
Ewings Sarcoma Information Guide

Doctor Approved! iconThe purpose of this information guide is to help parents of newly diagnosed children find sources of information and support. This list is not meant to be comprehensive, but rather to provide starting points for information seeking. The materials can be found at the Patient Education Resource Center (PERC) of the University of Michigan Comprehensive Cancer Center in room B1-361.

Last updated 09/09

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Brochures

Leukemia & Lymphoma Society. "Learning and Living with Cancer" [note: this opens as a .pdf document].

National Cancer Institute. "Young People With Cancer: A Handbook for Parents".

Books

Carroll, William L., and Jessica B. Reisman. 100 Questions & Answers about Your Child's Cancer. Sudbury, MA: Jones and Bartlett Publishers, 2005.

Janes-Hodder, Honna & Keene, Nancy. Childhood Cancer: A Parent's Guide to Solid Tumor Cancers. 2nd. Edition. Sebastopol, CA: O'Reilly, 2002.

Parker, Robert; Trezza Debra. Understanding childhood cancers. Jackson, Miss.: University Press of Mississippi, 2007.

Parker, Robert.; Trezza, Debra. Understanding childhood cancers. Jackson, MS: University Press of Mississippi, 2007.

Woznick, Leigh A., and Carol D. Goodheart. Living with Childhood Cancer: A Practical Guide to Help Parents Cope. 1st ed. Washington, DC: American Psychological Association, 2002.

Web Resources

American Cancer Society All About Ewing's Family of Tumors.
  • Go to the American Cancer Society site
    (NOTE: this link will open in a second browser window for your convenience):
  • Click on "Choose a Cancer Type or Topic"
  • Select "Ewing's Family of Tumors" from list and click "Go"
  • Click on "All About Ewing's Family of Tumors"

Sarcoma Foundation of America

New and Information about different types of sarcoma and links to other relevant sites.

CureSearch. Ewing Sarcoma

  • Go to the CureSearch site at www.curesearch.org
    (NOTE: this link will open in a second browser window for your convenience):
  • Click "Newly Diagnosed"
  • Select "Ewing's Sarcoma" from list and click "Submit"

National Cancer Institute. Ewing's Family of Tumors

  • Go to the National Cancer Institute site at www.cancer.gov
    (NOTE: this link will open in a second browser window for your convenience):
  • Under "All Cancer Types" Click on "A to Z list of Cancers"
  • Select "Ewing's Family of Tumors" from list

People Living With Cancer. Ewing's Sarcoma, Childhood

  • Go to the People Living With Cancer site at: www.plwc.org
    (NOTE: this link will open in a second browser window for your convenience):
  • Under "PLWC Guides to Cancer" Select: "Ewing's Sarcoma, Childhood"

Email Groups (Listservs)

E-SARCOMA is an email discussion group for parents of children diagnosed with Ewing's Sarcoma, hosted by the Association of Cancer Online Resources (ACOR).

Organizations

Candlelighters
Website: www.candlelighters.org
Phone: 800-366-2223

The National Children's Cancer Society

Website: http://nationalchildrenscancersociety.com
Phone: 800-5-FAMILY (800-532-6459)

Sarcoma Alliance

Website: www.sarcomaalliance.org
Phone: 415-381-7236

This document is not intended to take the place of the care and attention of your personal physician or other professional medical services. Our aim is to promote active participation in your care and treatment by providing information and education. Questions about individual health concerns or specific treatment options should be discussed with your physician.

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University of Michigan Comprehensive Cancer Center
1500 East Medical Center Drive
Ann Arbor, MI 48109

© 2009 Regents of the University of Michigan / Developed & maintained by: Public Relations & Marketing Communications. Contact Us or UMHS. The information presented is not a tool for self diagnosis or a substitute for professional care.

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