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Neuroblastoma Information Guide

Doctor Approved! icon The purpose of this information guide is to direct patients and health care professionals to sources of information on cancer and related topics, it does not constitute an endorsement of the information contained in the resources. This list is not meant to be comprehensive, but rather to provide starting points for Information seeking. All listed materials can be found at the Patient Education Resource Center of the University of Michigan Comprehensive Cancer Center in room B1-361.

Last updated 09/09

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Brochure

Leukemia & Lymphoma Society. "Learning and Living with Cancer" - note: opens as a .pdf document.

National Cancer Institute. "Young People With Cancer: A Handbook for Parents".

Books

Carroll, William L., and Jessica B. Reisman. 100 Questions & Answers about Your Child's Cancer. Sudbury, Mass: Jones and Bartlett Publishers, 2005.

Howell, Della L. My child Has Cancer: a Parent's Guide to Diagnosis, Treatment, and Survival. Westport, CT,: Praeger, 2008

Parker, Robert; Trezza Debra. Understanding Childhood Cancers. Jackson, Miss.: University Press of Mississippi, 2007.

Web Resources

All about Neuroblastoma Cancer on the American Cancer Society website.
  • Go to the American Cancer Society site
    (NOTE: this link will open in a second browser window for your convenience):
  • Under "Choose a cancer topic" select "Neuroblastoma"
  • Click on: "All About Neuroblastoma Cancer"

CureSearch

Information on on neuroblastoma for children and parents is available on this site.

NANT. New Approaches to Neuroblastoma Therapy

NANT is a collaborative research group of 15 Universities and Childrensf Hospitals with strong research and treatment programs for neuroblastoma. The site provides information about clinical trials conducted by the group, contact information of treatment centers and downloadable files of publications related to the NANT study.

KidsHealth.org. Neuroblastoma.

  • Select the Parent site, Teen site or kids Site and enter "Neuroblastoma" in the search box.

    This site covers medical and emotional issues about neuroblastoma.

National Cancer Institute. Neuroblastoma.

Cancer.Net. Neuroblastoma, Childhood Cancer.br />

  • Go to the Cancer.Net site
  • Under "Cancer.Net Guides to Cancer" Select: "Neuroblastoma - Childhood"

Email Lists (Listservs)

N-BLASTOMA is the Neuroblastoma email group.

Ped-Onc is an email discussion group for parents of children with cancer.

Patient Support Organizations

Candlelighters
website: http://www.candlelighters.org
Phone: 800-366-2223

The National Children's Cancer Society
website: http://www.children-cancer.org
Phone: 800-5-FAMILY (800-532-6459)

Retinoblastoma International
website: www.retinoblastoma.net
Phone: (323)669-2299

This document is not intended to take the place of the care and attention of your personal physician or other professional medical services. Our aim is to promote active participation in your care and treatment by providing information and education. Questions about individual health concerns or specific treatment options should be discussed with your physician.

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