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Resources Childhood Cancer
Neuroblastoma Information Guide

Doctor Approved! icon The purpose of this information guide is to direct patients and health care professionals to sources of information on cancer and related topics, it does not constitute an endorsement of the information contained in the resources. This list is not meant to be comprehensive, but rather to provide starting points for Information seeking. All listed materials can be found at the Patient Education Resource Center of the University of Michigan Comprehensive Cancer Center in room B1-361.

Last updated 11/2010

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Brochures

Leukemia & Lymphoma Society - " Learning and Living with Cancer" [PDF]

National Cancer Institute - "Young People With Cancer: A Handbook for Parents"

Books

Brackman, Jeanne Munn. Children with Cancer: A Reference Guide for Parents. New York: Oxford University Press, 2010.

Carroll, William L., and Jessica B. Reisman. 100 Questions & Answers about Your Child's Cancer. Sudbury, Mass: Jones and Bartlett Publishers, 2005.

Howell, Della L. My child Has Cancer: a Parent's Guide to Diagnosis, Treatment, and Survival. Westport, CT,: Praeger, 2008

Parker, Robert; Trezza Debra. Understanding Childhood Cancers. Jackson, Miss.: University Press of Mississippi, 2007.

Web Resources

American Cancer Society - Neuroblastoma
  • Access the American Cancer Society website: www.cancer.org
  • Click on "Learn About Cancer"
  • Select "Neuroblastoma" from the list and click "Go"
  • Click on: "Neuroblastoma Detailed Guide"

American Society of Clinical Oncology Neuroblastoma, Childhood

  • Access the American Society of Clinical Oncology website: www.cancer.net
  • Click on "Cancer Types"
  • Click on "M-Q" and select "Neuroblastoma - Childhood"

CureSearch - Neuroblastoma

This site has sections on neuroblastoma at different stages.
  • Access the CureSearch website: www.cursearch.org
  • Click on "For Parents/Families" or "For Patients"
  • Select a stage from "Newly Diagnosed" to "After Treatment"
  • Select "Neuroblastoma" from the list.

NANT. New Approaches to Neuroblastoma Therapy

NANT is a collaborative research group of 15 Universities and Childrens' Hospitals with strong research and treatment programs for neuroblastoma. The site provides information about clinical trials conducted by the group, contact information of treatment centers and downloadable files of publications related to the NANT study.

National Cancer Institute - Neuroblastoma

  • Access the National Cancer Institute website: www.cancer.gov
  • Click on "All Cancer Types"
  • Click on "N-R" and select "Neuroblastoma"

The Nemours Foundation - Neoroblastoma

  • Access the Nemours Foundation website: www.kidshealth.org/parent/
  • Click on "Medical Problems"
  • Scroll down and click on "Cancer & Tumors"
  • Click on "Neuroblastoma"

Patient Support Organizations

Children's Neuroblastoma Cancer Foundation
Website: www.nbhope.org
Phone: 1-866-671-2623

Candlelighters

Website: www.candlelighters.org
Phone: 800-366-2223

The National Children's Cancer Society

Website: www.children-cancer.org
Phone: 800-5-FAMILY (800-532-6459)

Retinoblastoma International

Website: www.retinoblastoma.net
Phone: (323)669-2299

This document is not intended to take the place of the care and attention of your personal physician or other professional medical services. Our aim is to promote active participation in your care and treatment by providing information and education. Questions about individual health concerns or specific treatment options should be discussed with your physician.

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