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Childhood Cancer - Leukemia
Information Guide

Doctor Approved! icon The purpose of this information guide is to help parents of children newly diagnosed with Leukemia find sources of information and support. This list is not meant to be comprehensive, but rather to provide starting points for information seeking. The materials can be found at the Patient Education Resource Center of the University of Michigan Comprehensive Cancer Center in room B1-361.

Last Updated 11/07

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Brochures

The Leukemia Society. "Acute Myelogenous Leukemia (AML)" -- note: the following links open as a .pdf document.

The Leukemia Society. "Acute Lymphocytic Leukemia (ALL)" -- note: the following links open as a .pdf document

Leukemia Society. "Coping with Childhood Leukemia and Lymphoma" note: this link will open a .pdf document.

Leukemia & Lymphoma Society. "Learning and Living with Cancer" - note: opens as a .pdf document.

National Cancer Institute. " What You Need to Know about Leukemia".

National Cancer Institute. "Young People With Cancer: A Handbook for Parents"

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Article

Pui, Ching-Hon. "Advancements in Research are Helping Children Who Have Acute Lymphoblastic Leukemia." Coping; Vol. 16, no. 1, January/February 2002.

Books

Carroll, William L., and Jessica B. Reisman. 100 Questions & Answers about Your Child's Cancer. Sudbury, MA: Jones and Bartlett Publishers, 2005.

Keene, Nance. Childhood Leukemia: A Guide for Families, Friends and Caregivers. 3rd ed. Sebastopol, CA: O'Reilly and Associates, 2002.

Excerpts from the book are available on the Childhood Leukemia website.

Woznick, Leigh A., and Carol D. Goodheart. Living with Childhood Cancer: A Practical Guide to Help Parents Cope. 1st ed. Washington, DC: American Psychological Association, 2002

Web Resources

All About Leukemia - Children's
  • Go to the American Cancer Society site (NOTE: this link will open in a second browser window for your convenience):
  • click on "Choose a cancer type" select "Leukemia - Children's" and click "go"
  • click on "All about Leukemia - Children's'"

CureSearch

Information on childhood lymphomas for children and parents is available on this site.

Leukemia & Lymphoma Society

A wealth of information on treatment of blood related cancers, support and practical issues.

Living with Leukemia

This site includes overviews of specific diseases, medical news, tips from parents and a glossary.

Leukemia Home Page on cancer.gov

  • Go to the National Cancer Institute site (NOTE: this link will open in a second browser window for your convenience):
  • click on: "Childhood Cancer"
  • Select either: Childhood Acute Lymphoblastic Leukemia or Childhood Acute Myeloid Leukemia

Childhood Cancer: Leukemia on the Nemours Foundation website

  • Go to: http://www.kidshealth.org/parent/ [Note: This link will open in a separate browser window
  • Click on "Medical Problems"
  • Scroll down and click on: " Childhood Cancer: Leukemia"

Email Groups (Listservs)

ALL-KIDS is an email discussion group for parents of children with ALL hosted by ACOR - the Association of Cancer Online Resources.

Ped-Onc is an email discussion group for all types of pediatric cancers hosted by ACOR - the Association of Cancer Online Resources.

Organizations

Children's Leukemia Foundation of Michigan
Website: www.leukemiamichigan.org
Phone: 248-353-8222, 800-825-2536

Leukemia & Lymphoma Society

Website: www.leukemia-lymphoma.org
Phone: 914-949-5213

Leukemia Research Foundation

Website: www.leukemia-research.org
Phone: 847-424-0600

The National Children's Cancer Society

Website: http://nationalchildrenscancersociety.com
Phone: 800-5-FAMILY

National Children's Leukemia Foundation

Website: www.leukemiafoundation.org
Phone: 800-448-3467

This list does not constitute an endorsement of the information contained in the resources. It is provided for educational purposes only and are not intended for nor engaged in rendering medical advice or professional services. The information provided through this list and its links should not be used for diagnosing or treating a health problem or a disease. It is not a substitute for professional care.

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University of Michigan Comprehensive Cancer Center
1500 East Medical Center Drive
Ann Arbor, MI 48109

This site is part of the U-M Health System. The information presented is not a tool for self diagnosis or a substitute for professional care. © 2008 U-M Comprehensive Cancer Center