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Resources: Childhood Cancer - Lympohoma
Information Guide

Doctor Approved! icon The purpose of this information guide is to help parents of children newly diagnosed with Lymphoma find sources of information and support. This list is not meant to be comprehensive, but rather to provide starting points for information seeking. The materials can be found at the Patient Education Resource Center of the University of Michigan Comprehensive Cancer Center in room B1-361.

updated 11/07

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Brochures

Cure for Lymphoma Foundation. "Understanding Hodgkin's Lymphoma: An Introductory Guide for Patients."

Cure for Lymphoma Foundation. "Understanding Non-Hodgkin's Lymphoma: An Introductory Guide for Patients."

Leukemia & Lymphoma Society. "The Lymphomas" -- note: this link will open a .pdf document.

Leukemia & Lymphoma Society. "Coping with Childhood Leukemia and Lymphoma" note: this link will open a .pdf document.

Leukemia & Lymphoma Society. "Learning and Living with Cancer" - note: opens as a .pdf document.

National Cancer Institute. "What You Need to Know About Hodgkin's Disease".

National Cancer Institute. "What You Need to Know About Non-Hodgkin's Lymphoma."

Books

Adler, Elizabeth M. Living with Lymphoma: A Patient's Guide. Baltimore, MD: Johns Hopkins University Press, 2005.

Holman, Peter. 100 Questions and Answers about Lymphoma. Sudbury, MA: Jones and Bartlett Publishers, 2004.

Woznick, Leigh A., and Carol D. Goodheart. Living with Childhood Cancer: A Practical Guide to Help Parents Cope. 1st ed. Washington, DC: American Psychological Association, 2002.

Web Resources

All about Childhood Non-Hodgkin’s Lymphoma” on the American Cancer Society site
  • Go to the American Cancer Society [this link will open in a second browser window]
  • Click on: "Choose a cancer topic"
  • Select appropriate topic from list and click "Go"
  • Click on: "All About Childhood Non-Hodgkin’s Lymphoma " OR
    "All about Hodgkin's Disease"

Childhood Cancer: Lymphoma on the Nemours Foundation website

  • Go to: http://www.kidshealth.org/parent/ [this link will open in a second browser window]
  • Click on "Medical Problems"
  • Scroll down and click on: " Childhood Cancer: Lymphoma"

CureSearch

Information on childhood lymphomas for children and parents is available on this site.

Leukemia & Lymphoma Society

News and information on blood related cancers and patient support services offered by this organization.

LymphomaFocus

A comprehensive educational resource for the Lymphoma community, includes articles and webcasts.

Lymphoma Information Network

A well organized site with explanations of lymphoma types and treatment with a separate section for childhood lymphomas.

Lymphoma Research Foundation

Access to a printable version of publications and educational materials on lymphoma.

Email Groups (Listservs)

PED-LYMPHOMA is an email discussion group for parents of children with lymphoma hosted by ACOR - the Association of Cancer Online Resources.

Ped-Onc is an email discussion group for all types of pediatric cancers hosted by ACOR - the Association of Cancer Online Resources.

Organizations

Leukemia & Lymphoma Society – Michigan Chapter
Website: www.leukemia-lymphoma.org
Phone: 800-456-5413

Children's Leukemia Foundation of Michigan

Website: www.leukemiamichigan.org
Phone: 800-825-2536

This list does not constitute an endorsement of the information contained in the resources. It is provided for educational purposes only and are not intended for nor engaged in rendering medical advice or professional services. The information provided through this list and its links should not be used for diagnosing or treating a health problem or a disease. It is not a substitute for professional care.

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University of Michigan Comprehensive Cancer Center
1500 East Medical Center Drive
Ann Arbor, MI 48109

This site is part of the U-M Health System. The information presented is not a tool for self diagnosis or a substitute for professional care. © 2008 U-M Comprehensive Cancer Center