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Pediatric / Childhood Cancers Resources
The purpose of this information guide is to direct patients and
health care professionals to sources of information on cancer and related topics,
it does not constitute an endorsement of the information contained in the resources.
This list is not meant to be comprehensive, but rather to provide starting points for Information seeking.
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Last updated 07/09
National Cancer Institute
Pediatric Brain Tumor Foundation of the United States.
"Basic Facts About Pediatric Brain and Spinal Cord Tumors"
"Questions For Your Medical Care Team When Your Child Has a Brain Tumor"
Children's Brain Tumor Foundation.
A Resource Guide for Parents of Children with Brain Or Spinal Cord Tumors.
4th ed. New York, NY: Children's Brain Tumor Foundation, 2006. Order a free copy e-mail the Children's Brain Tumor Foundation at:
http://cbtf.org/cms/resource_guide.
American Brain Tumor Association. Primer of Brain Tumors:
A Patient's Reference Manual. 8th ed. Des Plains, Il: American Brain Tumor Association, 2004.
A printable version is available online at the American Brain Tumor Association
web site.
Shiminski-Maher, Tania. Childhood Brain and Spinal Cord Tumors: a Guide for Families, Friends &
Caregivers. Sebastopol, CA: O'Reilly & Associates, Inc, 2002.
Black, Peter M.: Hogan, Sharon Cloud. Living with a Brain Tumor: Dr.
Peter Black's Guide to Taking Control of Your Treatment. New York:Henry Holt, 2006.
Stark-Vance, Virginia. 100 Questions & Answers about Brain Tumors. Sudbury, MA: Jones and Bartlett,
2004.
Zeltzer, Paul M. Brain Tumors: Finding the Ark: Meeting the Challenges of Treatment Choices, Side effects,
Children's Unique Needs, Healthcare Costs & Long Term Adjustment. Encino, Cal: Shilysca Press, 2006.
American Brain Tumor Association
An extensive site includes tumor specific information as well as a dictionary and information on living with
coping with a brain tumor. Has a section for children and siblings.
The Brain Tumor Society online
The Patients Resources section included detailed medical information
including pathology, nutrition and lay-language summaries of published
professional articles. This site also includes Information about support
services for patients and families.
Clinical Trials and Noteworthy Treatments for Brain Tumors
This site has a comprehensive database of brain tumor clinical trials, articles,
and directories of hospitals and physicians.
Childhood Brain Tumor Foundation
Includes articles, medical news and lectures about children’s brain tumors.
Children's Brain Tumor Foundation
This site has information on supporting the child with a brain tumor in the
hospital, school, and home. Also includes a detailed section on various
organizations offering patient support services for pediatric brain tumor
patients and families.
National Brain Tumor Foundation
This site has information on medical and support issues, frequently asked
questions and medical news.
BRAINTMR -- This listserv discusses all adult and
pediatric brain tumors. This page also provides access to listservs focusing of specific types of
childhood brain tumors.
Childhood Brain Tumor Foundation
Phone: 301-515-2900
Children's Brain Tumor Foundation
Phone: 212-367-9000
American Brain Tumor Association
Phone: 847-827-9910
Fax: 847-827-8000 or 847-886-2282
The Brain Tumor Society
Phone: 800-770-8287
Fax 617-924-9998
Pediatric Brain Tumor Foundation of the United States
Phone: 800-253-6530
Fax: 828-665-6894
This document is not intended to take the place of the care and attention of
your personal physician or other professional medical services.
Our aim is to promote active participation in your care and treatment
by providing information and education.
Questions about individual health concerns or specific treatment options
should be discussed with your physician.
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