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Pediatric / Childhood Cancers Resources
The purpose of this information guide is to direct patients and
health care professionals to sources of information on cancer and related topics,
it does not constitute an endorsement of the information contained in the resources.
This list is not meant to be comprehensive, but rather to provide starting points for Information seeking.
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Last updated 11/2010
Leukemia & Lymphoma Society.
"Learning and Living with Cancer: Advocating for your Child's
Educational Needs". A printable version is available at www.leukemia-lymphoma.org.
National Cancer Institute
"What You Need to Know about Brain Tumors".
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"Young People with Cancer: A Handbook for Parents".
Pediatric Brain Tumor Foundation of the United States.
"Basic Facts About Pediatric Brain and Spinal Cord Tumors"
"Questions For Your Medical Care Team When Your Child Has a Brain Tumor"(English and Spanish)
Order free of charge by calling 828-665-689 or access online at: www.pbtfus.org/
Children's Brain Tumor Foundation.
A Resource Guide for Parents of Children with Brain Or Spinal Cord Tumors.
4th ed. New York, NY: Children's Brain Tumor Foundation, 2006. Order a free copy e-mail the Children's Brain Tumor Foundation at:
http://cbtf.org/cms/resource_guide.
American Brain Tumor Association. Primer of Brain Tumors:
A Patient's Reference Manual. 8th ed. Des Plains, Il: American Brain Tumor Association, 2004.
A printable version is available online at the American Brain Tumor Association
web site.
Black, Peter M.: Hogan, Sharon Cloud. Living with a Brain Tumor: Dr.
Peter Black's Guide to Taking Control of Your Treatment. New York:Henry Holt, 2006.
Stark-Vance, Virginia. 100 Questions & Answers about Brain Tumors. Sudbury, MA: Jones and Bartlett,
2004.
Zeltzer, Paul M. Brain Tumors: Finding the Ark: Meeting the Challenges of Treatment Choices, Side effects,
Children's Unique Needs, Healthcare Costs & Long Term Adjustment. Encino, Cal: Shilysca Press, 2006.
American Brain Tumor Association
This site includes tumor specific information as well as a dictionary and information on living with coping with a brain tumor.
Has information for children and siblings.
American Cancer Society - Brain/CNS Tumors in Children Detailed Guide
- Access the American Cancer Society website at: www.cancer.org
- Click on "Learn About Cancer"
- Select "Brain/CNS Tumors in Children" and click "Go"
- Click on "Brain/CNS Tumors in Children Detailed Guide"
Clinical Trials and Noteworthy Treatments for Brain Tumors
This site has a comprehensive database of brain tumor clinical trials, articles,
and directories of hospitals and physicians.
Childhood Brain Tumor Foundation
Includes articles, medical news and lectures about children's brain tumors.
Children's Brain Tumor Foundation
This site has information on supporting the child with a brain tumor in the
hospital, school, and home. Also includes a detailed section on various
organizations offering patient support services for pediatric brain tumor
patients and families.
CureSearch - Brain Tumors
This site has sections on Brain Tumors at different stages.
- Access the CureSearch webiste at: www.curesearch.org/
- Click on "For Parents/Families" or "For Patients"
- Select a stage from "Newly Diagnosed" to "After Treatment"
- Select "Brain Tumors" from the list.
National Brain Tumor Foundation
This site has information on medical and support issues, frequently asked questions and medical news.
American Brain Tumor Association
Phone: 847-827-9910;
Fax: 847-827-800, 847-886-2282
