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Resources: Brain Tumors
Information Guide

Doctor Approved! icon The purpose of this information guide is to direct patients and health care professionals to sources of information on cancer and related topics, it does not constitute an endorsement of the information contained in the resources. This list is not meant to be comprehensive, but rather to provide starting points for Information seeking. The materials can be found at the Patient Education Resource Center (PERC) of the University of Michigan Comprehensive Cancer Center in room B1-361.

Added: 3/2010

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Brochures

American Brain Tumor Association. "Living with a Brain Tumor: A Guide for Brain Tumor Patients" - opens as .pdf document.

CancerCare. "Treatment Update on Brain Tumors: Glioblastoma"

National Cancer Institute. "What You Need to Know about Brain Tumors".

Books

Segal, Gail and American Brain Tumor Association. Dictionary for Brain Tumor Patients. Des Plains, Il: American Brain Tumor Association, 2002. A printable version available online.

Black, Peter; Hogan, Sharon Cloud. Living with a Brain Tumor: Dr. Peter Black's Guide to Raking Control of Your Treatment. New York: Henry Holt, 2006.

American Brain Tumor Association. Primer of Brain Tumors: A Patient's Reference Manual. 8th ed. Des Plains, Il: American Brain Tumor Association, 2004. A printable version is available online.

Stark-Vance, Virginia. 100 Questions & Answers about Brain Tumors. Sudbury, MA: Jones and Bartlett, 2004.

Zeltzer, Paul M. Brain Tumors: Leaving the Garden of Eden: A Survival Guide to Diagnosis, Learning the Basics, Getting Organized and Finding Your Medical Team. Encino, Ca: Shilysca Press, 2004.

Audiovisual Resources

Patient Education Institute. Brain Cancer Interactive Tutorial at Medlineplus.gov.
      Access at: www.medlineplus.gov. Click on: "Interactive Tutorials" and select from a list.

This slide show utilizes illustrations, sound, and animations to provide basic, easy-to-understand explanations of brain anatomy, primary and metastatic tumors and the most common therapies. It is possible to turn on a voice over or print a text version.

Web Resources

American Brain Tumor Association
This organization offers information and support services for people diagnosed with brain tumors. The Tumor & Treatment Information section has information about specific tumors, treatments, and living with a brain tumor.

Brain and Spinal Cord Tumors Information from the University of Michigan Comprehensive Cancer Center

The Brain Tumor Foundation

This site included detailed information about brain tumors types and support services for people with a brain tumor and their loved ones.

National Brain Tumor Society

This site presents information regarding treatment options and community resources for brain tumor patients and families. Features include a database of questions answered by health professionals and a link library arranged by topic. It is also possible to download and print this organization's publications including The Essential Guide to Brain Tumors, The Resource Directory and Coping With Your Loved One's Brain Tumor.

Musella Foundation for Brain Tumor Research Information. Clinical Trials & Noteworthy Treatments for Brain Tumors.

This site offers a comprehensive database of clinical trials for brain tumors as well as detailed information about brain tumors research including lay-terms summaries of medical articles, medical news and a dictionary. The video library features experts in the field.

Email Groups (Listservs)

BRAINTMR - This email group discusses all adult and pediatric brain tumors. This page also provides access to other email groups focusing of specific types of brain tumors.

Organizations

American Brain Tumor Association
Phone: 847-827-9910
Fax: 847-827-800, 847-886-2282

National Brain Tumor Society

National Brain Tumor Society is a nonprofit organization inspiring hope and providing leadership within the brain tumor community. We exist to find a cure and improve the quality of life for those affected by brain tumors. We fund strategic research, deliver support services, and promote collaboration.

Phone: 212-265-2401

This document is not intended to take the place of the care and attention of our personal physician or other professional medical services. Our aim is to promote active participation in your care and treatment by providing information and education. Questions about individual health concerns or specific treatment options should be discussed with your physicians.

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