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Home > Cancer and Treatments > Neurologic (Brain) Cancer Conditions > Brain Tumor Educational Resources Brain Tumors Information Guide
The purpose of this guide is to help patients and families find sources of information and support. This list is meant to provide links
to authoritative, up-to-date information sources for patients, families, and caregivers.The materials in this guide can be found at the Patient Education ResourceThe materials can be found at the Patient Education Resource Center (PERC) of the University of Michigan Comprehensive Cancer Center in room B1-361. Updated 8/2012 Print-friendly version of this guide! BrochuresAmerican Brain Tumor Association: "Living with a Brain Tumor: A Guide for Brain Tumor Patients".Printable versions of this booklet and other publications are available at the American Brain Tumor Association website. CancerCare: "Treatment Update on Brain Tumors: Glioblastoma" National Cancer Institute: "What You Need to Know about Brain Tumors". BooksSegal, Gail and American Brain Tumor Association. Dictionary for Brain Tumor Patients. Des Plains, Il: American Brain Tumor Association, 2002. Request a hard copy at: www.abta.org or call 800-886-2282.Black, Peter; Hogan, Sharon Cloud. Living with a Brain Tumor: Dr. Peter Black's Guide to Raking Control of Your Treatment. New York: Henry Holt, 2006. American Brain Tumor Association. Primer of Brain Tumors: A Patient's Reference Manual. 8th ed. Des Plains, Il: American Brain Tumor Association, 2004. A printable version is available online at www.abta.org Stark-Vance, Virginia. 100 Questions & Answers about Brain Tumors. Sudbury, MA: Jones and Bartlett, 2004. Zeltzer, Paul M. Brain Tumors: Leaving the Garden of Eden: A Survival Guide to Diagnosis, Learning the Basics, Getting Organized and Finding Your Medical Team. Encino, Ca: Shilysca Press, 2004. Audiovisual ResourcesPatient Education Institute. Brain Cancer Interactive Tutorial at Medlineplus.gov.Access at: www.medlineplus.gov. Click on: "Interactive Tutorials" and select from a list.
This slide show utilizes illustrations, sound, and animations to provide basic, easy-to-understand explanations of
brain anatomy, primary and metastatic tumors and the most common therapies. It is possible to turn on a voice over
or print a text version.
Web ResourcesAmerican Brain Tumor Association
This organization offers information and support services for people diagnosed with brain tumors. The Tumor & Treatment Information section has information
about specific tumors, treatments, and living with a brain tumor.
Brain and Spinal Cord Tumors Information from the University of Michigan Comprehensive Cancer Center This site included detailed information about brain tumors types and support services for people with a brain tumor
and their loved ones.
This site presents information regarding treatment options and community resources for brain tumor patients and families. Features include a
database of questions answered by health professionals and a link library arranged by topic. It is also possible to download and print this organization's
publications including: "The Essential Guide to Brain Tumors", "The Resource Directory" and "Coping With Your Loved One's Brain Tumor".
Musella Foundation for Brain Tumor Research Information. Clinical Trials &
Noteworthy Treatments for Brain Tumors.
This site offers a comprehensive database of clinical trials for brain tumors as well as detailed information about brain tumors research including lay-terms
summaries of medical articles, medical news and a dictionary. The video library features experts in the field.
Email Groups (Listservs)BRAINTMR - This email group discusses all adult and pediatric brain tumors. To subscribe go to: www.virtualtrials.com/brntmr.cfm. This page also provides access to other email groups focusing of specific types of brain tumors.OrganizationsAmerican Brain Tumor Association
Phone: 847-827-9910
Fax: 847-827-800, 847-886-2282
Phone: 212-265-2401
Phone: 800-770-8287
This document is not intended to take the place of the care and attention of your personal physician or other professional medical services. Our aim is to promote active participation in your care and treatment by providing information and education. Questions about individual health concerns or specific treatment. |
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