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The purpose of this information guide is to help patients newly diagnosed with a brain tumor and their
families to find sources of information and support. This list is not meant to be comprehensive, but rather to
provide starting points for information seeking. The materials can be found at the Patient Education Resource
Center (PERC) of the University of Michigan Comprehensive Cancer Center in room B1-361.
Added: 3/2008
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American Brain Tumor Association.
"Living with a Brain Tumor: A Guide for Brain Tumor Patients" - opens as .pdf document.<
CancerCare. "Brain Tumors: Current
Treatments and Hope for the Future" - opens as .pdf document.
National Cancer Institute. "What You Need to Know about
Brain Tumors".
Segal, Gail and American Brain Tumor Association.
Dictionary for Brain Tumor Patients. Des Plains,
Il: American Brain Tumor Association, 2002. A
printable version available online.
Black, Peter; Hogan, Sharon Cloud. Living with a Brain Tumor: Dr. Peter Black's Guide to Raking Control of
Your Treatment. New York: Henry Holt, 2006.
American Brain Tumor Association. Primer of Brain Tumors: A Patient's Reference Manual. 8th ed. Des
Plains, Il: American Brain Tumor Association, 2004. A
printable version is available online.
Stark-Vance, Virginia. 100 Questions & Answers about Brain Tumors. Sudbury, MA: Jones and Bartlett, 2004.
Zeltzer, Paul M. Brain Tumors: Leaving the Garden of Eden: A Survival Guide to Diagnosis, Learning the
Basics, Getting Organized and Finding Your Medical Team. Encino, Ca: Shilysca Press, 2004.
Patient Education Institute.
Brain Cancer Interactive Tutorial at Medlineplus.gov.
Access at:
www.medlineplus.gov. Click on:
"Interactive Tutorials" and select from a list.
This slide show utilizes illustrations, sound, and animations to provide basic, easy-to-understand explanations of
brain anatomy, primary and metastatic tumors and the most common therapies. It is possible to turn on a voice over
or print a text version.
American Brain Tumor Association
This organization offers information and support services for people diagnosed with brain tumors. The Tumor
Information section offers information about specific tumors, treatments and living with a brain tumor.
The Brain Tumor Society
This site included detailed information about brain tumors, nutrition, complementary therapies and support
services as well as lay-language summaries of medical articles. It is also possible to download brochures
and fact sheets about various topics. The book Color Me Hope: A Resource Guide for People Affected by
Brain Tumors, is also available for printing.
National Brain Tumor Foundation.
This site presents information regarding treatment options and community resources for brain tumor
patients and families. Features include a database of questions answered by health professionals and a
link library arranged by topic. It is also possible to download and print this organization's publications
including "The Essential Guide to Brain Tumors", "The Resource Directory" and "Coping With Your Loved One's Brain
Tumor".
Musella Foundation for Brain Tumor Research Information. Clinical Trials &
Noteworthy Treatments for Brain Tumors.
This site offers a comprehensive database of clinical trials for brain tumors as well as extensive information
about brain tumors research including lay-terms summaries of medical articles, medical news and a dictionary.
The video library featuring brain tumor experts discussing various treatments is especially interesting.
BRAINTMR - This email group discusses all adult and
pediatric brain tumors. This page also provides access to other email groups focusing of specific types of brain tumors.
American Brain Tumor Association
Phone: 847-827-9910
Fax: 847-827-800, 847-886-2282
National Brain Tumor Foundation
Phone: 1-800-934-CURE
The Brain Tumor Society
Phone: 800-770-8287
Fax: 617-924-9998
This list does not constitute an endorsement of the information contained in the resources. It is provided for
educational purposes only and are not intended for nor engaged in rendering medical advice or professional
services. The information provided through this list and its links should not be used for diagnosing or
treating a health problem or a disease. It is not a substitute for professional care.
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