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Resources:
Myelodysplastic Syndromes
Information Guide

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The purpose of this information guide is to help patients newly diagnosed with Myelodysplastic Syndromes and their families to find sources of information and support. This list is not meant to be comprehensive, but rather to provide starting points for information seeking. The materials can be found at the Patient Education Resource Center (PERC) of the University of Michigan Comprehensive Cancer Center in room B1-361.

Revised 8/08

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Brochures

The Leukemia & Lymphoma Society. "Myelodysplastic Syndrome (MDS)." [PDF]

Aplastic Anemia & MDS International Foundation. "Myelodysplastic Syndromes Basic Explanations". [PDF]

Article

Caley, Beverly A. "Treatment Boost for MDS". Cure; Vol. 5, No. 4, Fall 2006 (p.18).

Book

Gotlib, Jason R.; Fechter, Lenn. 100 questions & answers about myelodysplastic syndromes. Sudbury, Mass.: Jones and Bartlett Publishers, 2008.

Web Resources

All About Myelodysplastic Syndrome

  • Go to the American Cancer Society site
    [this link will open in a second window]
  • Click on: "Choose a cancer topic"
  • Select " Myelodysplastic Syndrome " from the list and click "Go"
  • Click on: "All About Myelodysplastic Syndrome "

Aplastic Anemia & MDS International Foundation, Inc.

This site offers printable versions in PDF files of brochures, newsletters, patient conferences and Frequently Asked Questions about Myelodysplastic Syndrome.

Myelodysplastic Syndromes Foundation

This site offers a patient handbook, a collection of in-depth articles and research updates.

Myeloproliferative Disorders page on cancer.gov

This page links to treatment statements about Myelodsyplastic Syndromes and to other related documents.

Myelodysplastic Syndromes from the University of Michigan Comprehensive Cancer Center.

A short overview of the condition and information about the hematology/oncology team at the University of Michigan Comprehensive Cancer Center.

Organizations

Aplastic Anemia & MDS International Foundation, Inc.

800-747-2820 or 410-867-0242

Leukemia & Lymphoma Society – Michigan Chapter

800-456-5413
web site: Leukemia & Lymphoma Society

This list does not constitute an endorsement of the information contained in the resources. It is provided for educational purposes only and are not intended for nor engaged in rendering medical advice or professional services. The information provided through this list and its links should not be used for diagnosing or treating a health problem or a disease. It is not a substitute for professional care.

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University of Michigan Comprehensive Cancer Center
1500 East Medical Center Drive
Ann Arbor, MI 48109

This site is part of the U-M Health System. The information presented is not a tool for self diagnosis or a substitute for professional care. © 2008 U-M Comprehensive Cancer Center