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Resources:
Myelodysplastic Syndromes
Information Guide

The purpose of this information guide is to direct patients and health care professionals to sources of information on cancer and related topics, it does not constitute an endorsement of the information contained in the resources. This list is not meant to be comprehensive, but rather to provide starting points for Information seeking. All listed materials can be found at the Patient Education Resource Center of the University of Michigan Comprehensive Cancer Center in room B1-361.

Revised 11/10

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Brochures

Aplastic Anemia & MDS International Foundation.

• "Myelodysplastic Syndromes Basic Explanations". [PDF]
• Your Guide to Understanding MDS (Myelodysplastic Syndromes)
• A Guide to Understanding FDA Approved Drug Therapies for MDS
  • To order free materials online access: http://www.aamds.org/aplastic/
  • Click on "Diseases and Treatments"
  • Click on "Educational Materials"

The Leukemia & Lymphoma Society. "Myelodysplastic Syndrome (MDS)." [PDF]

Myelodysplastic Syndromes Foundation, Inc. "Understanding Myelodysplastic Syndromes" [PDF]

Book

Gotlib, Jason R.; Fechter, Lenn. 100 questions & answers about myelodysplastic syndromes. Sudbury, Mass.: Jones and Bartlett Publishers, 2008.

Audiovisual Resources

Cancervive. Living with MDS (Myelodysplastic Syndromes). Los Angeles, CA: Cancervive, 2007. (DVD; 13 min.)

Web Resources

American Cancer Society - Myelodysplastic Syndrome

• Access the American Cancer Society website: www.cancer.org
• Click on: "Learn about Cancer"
• Select " Myelodysplastic Syndrome " from the list and click "Go"

Aplastic Anemia & MDS International Foundation, Inc.

Myelodysplastic Syndromes Foundation

National Cancer Institute - Myeloproliferative Disorders

• Access the National Cancer Institute website at: www.cancer.gov
• Click on "Cancer Topics"
• Select"L-M" and click on"Myelodysplastic Syndrome" This page links to a treatment statements about Myelodsyplastic Syndromes and to other related documents.

Organizations

Aplastic Anemia & MDS International Foundation, Inc.

Leukemia & Lymphoma Society – Michigan Chapter

This document is not intended to take the place of the care and attention of your personal physician or other professional medical services. Our aim is to promote active participation in your care and treatment by providing information and education. Questions about individual health concerns or specific treatment options should be discussed with your physician.

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