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Home > Support & Survivorship > Patient and Family Support Services Program > Loss and Dignity > Grief & Loss Program > Resources End of Life
The purpose of this information guide is to direct cancer patients and their families to information sources on end-of-life issues. This list is not meant to be comprehensive, but rather to provide starting points for information seeking. The materials can be found at the Patient Education Resource Center of the University of Michigan Comprehensive Cancer Center in room B1-361. updated 07/07 Print-friendly version of this guide BrochuresAging with DignityHospice Foundation of America. "Caring for Someone who is Dying". Michigan Department of Community Health. "Guide to Hospice Care". "Advanced Cancer. Living Each Day".
"When Someone You Love Has Advanced Cancer" (opens as a .pdf document). National Comprehensive Cancer Network (NCCN) University of Michigan Health Systems. "Living Wills and Durable Powers of Attorney for Health Care." ArticlesBoughton, Barbara. "Facing the Future: Planning for a Good Death." Cure; Vol. 2, No. 1, Spring 2003 (p.51).Emotional and legal issues at the end of life.
Boughton, Barbara. "Saying Goodbye with Love." InTouch; Vol.4, No. 2, March 2002 (p.35). End-of-life care and coordinating the medical care with the social and emotional needs
of the patient and his loved ones.
Abramovitz, Matt. "End of Life Care: Weighing Decisions." InTouch; Vol. 3, No. 4, July 2001 (p.50).
The article discusses patient-doctor communication about end-of-life decisions such
as treatment options, pain management, CPR, artificial nutrition and hydration. Living wills are also
covered.
VideotapeFamily Experiences Productions. Facing Death. Austin TX: Family Experiences Production, 1997.This is a two tape program. Tape one (33 minutes) focuses on providing physical,
emotional & spiritual comfort to loved ones and tape two (17 minutes) focuses on practical planning
and legal issues.
BooksAmerican Cancer Society. When the Focus is on Care: Palliative Care and Cancer. Altanta: American Cancer Society, 2005.Baines, Barry K. Ethical Will Resource Kit: Preserving Your Legacy of Values for Your Family: An Introduction to Ethical Wills with Step-by-Step Instructions and Exercises to Help You Prepare One. Minneapolis, MN: Josaba Ltd, 1998. Baines, Barry K. The Ethical Will Writing Guide Workbook: Preserving Your Legacy of Values for Your Family and Community. Minneapolis, MN: Josaba Ltd, 2001. Baines, Barry K. Ethical Wills: Putting Your Values on Paper. Cambridge, MA: Perseus Pub, 2001. Emmert, S. D. The Consumer's Practical Guide to Funerals, Burials & Cremation (Five star special ed.). Baltimore, Md: American Literary Press, 2005. Lee, Elizabeth. In Your Own Time: a Guide for Patients and Their Carers Facing a Lasting Illness at Home. New York: Oxford University Press, 2002. Lynn, Joanne. Handbook for Mortals: Guidance for People Facing Serious Illness. New York: Oxford University Press, 1999. Read excerpts online at www.grwothhouse.org. McPhelimy, Lynn. In the Checklist of Life. Rockfall, CT: AAIP Publishing, 1997. Sankar, Andrea. Dying at Home: a Family Guide for Caregiving. 2nd ed. Baltimore: Johns Hopkins University Press, 1999. Web ResourcesCaring Connections
This site provides a variety of free resources on topics such as: advance care planning, caregiving, pain,
financial issues, hospice and palliative care and grief and loss. Printable versions of state-specific
advanced directives documents and instructions are available free on the site.
This site offers extensive information for people and caregivers facing death
including signs of approaching death, pain and patient comfort and paperwork and logistics after a
death in the family. Users may also locate local hospice providers and support organizations on the site.
National Coalition for Cancer Survivorship. Palliative Care & Symptom
Management; End-of-Life issues.
People Living With Cancer. End-of-Life Care
This site provides information about hospice care and other end-of-life issues including locating local
services, communication at the end of life, pain control, and caregiving for the dying person.
The site also includes information on grief and bereavement.
Michigan Hospice & Palliative Care Organization (MHPCO)
This site offers extensive information relevant to people with a life limiting illness and their families. An
interactive map helps users to locate hospice providers in their area. Each listing includes the name, address, phone number and a description of the services provided by each hospice program.
This list does not constitute an endorsement of the information contained in the resources. It is provided for educational purposes only and are not intended for nor engaged in rendering medical advice or professional services. The information provided through this list and its links should not be used for diagnosing or treating a health problem or a disease. It is not a substitute for professional care. |
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University of Michigan Comprehensive Cancer Center © 2008 Regents of the University of Michigan / Developed & maintained by: Public Relations & Marketing Communications. Contact Us or UMHS. The information presented is not a tool for self diagnosis or a substitute for professional care. |
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