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Neuroblastoma Information Guide

Doctor Approved! iconThe purpose of this information guide is to help parents of children newly diagnosed with Neuroblastoma find sources of information and support. This list is not meant to be comprehensive, but rather to provide starting points for information seeking. The materials can be found at the Patient Education Resource Center of the University of Michigan Comprehensive Cancer Center in room B1-361.

Last updated 11/07

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Brochure

Leukemia & Lymphoma Society. "Learning and Living with Cancer" - note: opens as a .pdf document.

National Cancer Institute. "Young People With Cancer: A Handbook for Parents".

Books

Carroll, William L., and Jessica B. Reisman. 100 Questions & Answers about Your Child's Cancer. Sudbury, Mass: Jones and Bartlett Publishers, 2005.

Janes-Hodder, Honna & Keene, Nancy. Childhood Cancer: A Parent's Guide to Solid Tumor Cancers. 2nd. Edition. Sebastopol, CA: O'Reilly, 2002.

Parker, Robert; Trezza Debra. Understanding Childhood Cancers. Jackson, Miss.: University Press of Mississippi, 2007.

Woznick, Leigh A., and Carol D. Goodheart. Living with Childhood Cancer: A Practical Guide to Help Parents Cope. 1st ed. Washington, DC: American Psychological Association, 2002.

Web Resources

All about Neuroblastoma Cancer on the American Cancer Society website.
  • Go to the American Cancer Society site
    (NOTE: this link will open in a second browser window for your convenience):
  • Under "Choose a cancer type or topic" select "Neuroblastoma" and click "Go"
  • Click on: "All About Neuroblastoma Cancer"

CureSearch

Information on on neuroblastoma for children and parents is available on this site.

NANT - New Approaches to Neuroblastoma Therapy

NANT is a collaborative research group of 14 Universities and Childrens' Hospitals with strong research and treatment programs for neuroblastoma. The site provides information about clinical trials conducted by the group, contact information of treatment centers and downloadable files of publications related to the NANT study.

National Cancer Institute Neuroblastoma

  • Go to the National Cancer Institute www.cancer.gov site
    (NOTE: this link will open in a second browser window for your convenience):
  • Under "All Cancer Types" Click on "A to Z list of Cancers"
  • Select "Neuroblastoma" from list

People Living With Cancer. Neuroblastoma, Childhood Cancer.

  • Go to the People Living With Cancer site at: www.plwc.org
    (NOTE: this link will open in a second browser window for your convenience):
  • Under "PLWC Guides to Cancer" Select: "Neuroblastoma, Childhood Cancer"

Email Lists (Listservs)

Ped-Onc is an email discussion group for parents of children with cancer.

N-BLASTOMA is the Neuroblastoma email group.

Patient Support Organization

Children's Neuroblastoma Cancer Foundation
Website: www.cncf-childcancer.org
Phone: 1-866-671-2623

This list does not constitute an endorsement of the information contained in the resources. It is provided for educational purposes only and are not intended for nor engaged in rendering medical advice or professional services. The information provided through this list and its links should not be used for diagnosing or treating a health problem or a disease. It is not a substitute for professional care.

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University of Michigan Comprehensive Cancer Center
1500 East Medical Center Drive
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This site is part of the U-M Health System. The information presented is not a tool for self diagnosis or a substitute for professional care. © 2008 U-M Comprehensive Cancer Center